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Thanks everyone on the posts. Will have to look further into steroid myopathy as it sounds the same. Will try the test when my hubby gets home.

I just started on 5 mg of pred, weening down from 40mg (also on 100 mg of cytoxan) and I have the lovely fat pockets around my neck. My problem is the hump at the back of the neck that is causing me...

Thanks for the great advice everyone. Last week was a long, hard week at work and I decided to go on short term disability. Time to take care of myself.
My husband has been wonderful and very...

Thanks to everyone, didn't realize how much it would mean to me to be able to talk to someone going through the same thing. Already learning more on here about it all. It has only been since Oct...

Thanks Pete. Feels great to be able to talk to people going through my same situation.

Hello everyone, I was diagnosed with Wegeners 2 was ago and am on 100 mg cytoxan and 40 mg prednisone. I have read what I can on this and yet I don't feel I understand it all yet. A lot to take in. ...