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  1. Replies
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    Having sudden numbness in face and lips on one...

    Having sudden numbness in face and lips on one side of my face. It's happened twice now. First time I figured I had just woke up so I figured I just slept too hard on one side. Today though, I was...
  2. Thread: Where is everyone?

    by blm
    Replies
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    14,282

    Sorry to hear that. I hope you can get some rest...

    Sorry to hear that. I hope you can get some rest at some point. Thinking good thoughts for you.
  3. Rash seems to be doing as expected. Flu symptoms...

    Rash seems to be doing as expected. Flu symptoms and fever are pretty much gone. Neuropathy in my hand still sucks, but I'm learning to do everything with my right hand that I used to do with my...
  4. Thread: Member Map

    by blm
    Replies
    4
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    1,782

    I'm actually on there too, but I signed up...

    I'm actually on there too, but I signed up anonymously by accident. Anybody know how to change that? Columbia, MO. I'm an only too. Though I'm sure I'm not.
  5. Thread: National Smile Day

    by blm
    Replies
    2
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    2,452

    Gab - I read once that you can actually "fake...

    Gab -

    I read once that you can actually "fake it till you make it" with smiling as well. In other words, you don't have to be happy. Just make yourself smile. You'll feel a change almost...
  6. vdub - I felt the same way! I was given...

    vdub -

    I felt the same way! I was given celebrex by another doctor and it was working well. I asked rheumy to refill and he said no I couldn't take that. I think he's looking at the potential...
  7. Anne - Thanks for the good wishes! I think...

    Anne -

    Thanks for the good wishes! I think you're right about his reasoning, Anne. I've been doing some more research on shingles and did read that folks who were on higher doses of pred with...
  8. Thanks Gab - No he didn't give me anything...

    Thanks Gab -

    No he didn't give me anything yet. Just Tylenol for now. But he did say to text him if it was unbearable and he could prescribe something. Maybe he doesn't want me to get addicted?...
  9. Gabb - It was my rheumy, but he has since given...

    Gabb - It was my rheumy, but he has since given me his cell number and had me call him directly. Hope he doesn't regret that later.

    So here's the latest. I went to my scheduled appointment with...
  10. Pain Medication? It really hurts and I can't sleep.

    Are any of you taking something to relieve pain? I was diagnosed in August 2016, had 4 rituximab treatments, and felt pretty good until this Tuesday. They have tapered my pred from 60 to 30. I...
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    Wow! Glad you got some encouragement! That's a...

    Wow! Glad you got some encouragement! That's a lot to take in. So much information! The doctor gauntlet is something we must become familiar with unfortunately. I see 3 more next week as well. ...
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    Alysia - Love exists beyond all place and...

    Alysia -

    Love exists beyond all place and time. You are living proof.

    Thank you for sharing.

    --Becky
  13. Replies
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    26,160

    I had all of the same symptoms you are...

    I had all of the same symptoms you are describing, funny feeling in ears, short of breath, feeling like I have low blood sugar. When I started tapering the prednisone they were reduced. I don't...
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    Gab122 - Glad for the good news. And...

    Gab122 -

    Glad for the good news.

    And might I add that I share your feelings about longing for the Pre-WEGs life. I feel very lucky to have been diagnosed early. My symptoms were so light...
  15. Thread: Electromyogram

    by blm
    Replies
    12
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    2,379

    Pete - Glad your test went ok. Did anyone...

    Pete -

    Glad your test went ok.

    Did anyone recommend a chiropractor? Before I was diagnosed with WEGS in August I saw one regularly and she was able to reduce tingling sensations in my legs,...
  16. Thread: Water Quality?

    by blm
    Replies
    7
    Views
    2,202

    Thanks Vdub - As a Newbie I'm looking under...

    Thanks Vdub -

    As a Newbie I'm looking under every rock. This is reassuring.

    - Becky
  17. Thread: Water Quality?

    by blm
    Replies
    7
    Views
    2,202

    Water Quality?

    So Erin Brockovich has been publicizing that my local water supply is not what it should be. Anybody else with WEGS concerned about water quality, exposure to chemicals or bacteria, virus, etc....
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    We are investigating that. Nothing very close...

    We are investigating that. Nothing very close though. Nearest about 2 - 3 hours away. Not bad. I don't know if I'm ready to give up on him yet. I think he knows what he's doing, it's more a...
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    Longing for a team approach!

    Mike -

    Your story is so inspiring. After just being diagnosed in August, I am now working with a number of doctors who don't appear to be communicating at all. Though they are in the same...
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    Thanks Anne - You said almost exactly what my...

    Thanks Anne -

    You said almost exactly what my Rheumy said today at my appointment. See...you guys know your stuff!

    - Becky
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    8,879

    Tapering down my prednisone is in process. I've...

    Tapering down my prednisone is in process. I've dropped from 50 to 40 today. Feeling exhausted, muscle cramps, and sore throat. Anyone else have these kinds of things happen? I see my rheumy...
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    Teri - Sorry for how you are feeling. I am new...

    Teri -
    Sorry for how you are feeling. I am new to the disease and this forum but from what I've seen here you have one thing you can depend on--you are not alone. And when you are fighting the...
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    Nice Mike. I also have work in video production...

    Nice Mike. I also have work in video production and have been involved with many patient testimonies over the years. You did a great job on camera. Very relaxed and sincere. Sorry for your...
  24. Welcome Lindy. Us newbies have a lot to take in....

    Welcome Lindy. Us newbies have a lot to take in. Diagnosed in August. I've found the info here very helpful and the folks very friendly indeed.
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    Survey Monkey?

    Survey Monkey?
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