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You can all do it! Today at 2:30 pm marked my 15th year anniversary since being diagnosed.

Happy to be alive!

Cheers everyone!
Grab Wegeners by the throat and strangle the bastard!
...

The only thing I take now is the Imuran. 100mg each night before bed. I only just started that about a year ago.

I plan to quit smoking for sure :) I don't have any other health problems besides...

Ohhhh got ya!

Mindy♡

My Wegeners is not in remission cause of the smoking. Just the SS.

Mindy♡

Thank you! :) hummm.. maybe I'll get myself another dog name him Weggy haha hah!

Mindy♡

It is interesting eh... I wish I knew what chemical(s) cause maybe then there would be a pill that could be taken to suppress SS.

Mindy♡

Something in the cigarettes (a chemical of course) has suppressed the scare tissue from continuing to grow. I've even been told from my ENT specialist that he too agrees that my SS is not currently...

Lol! Hahahahahaha I actually have a Wegeners Dance. It's similar to that of the Carlton Dance. Lmao!

Mindy♡

Hey! Thank you! How I do it... well I surrounded myself by positive people. I live my life literally like the next day it could be over. Not to say I do crazy things like skydiving or anything.
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No. I still smoke.... but out of fear honestly. My SS is away because of my smoking.... I'm terrified to fully quit smoking in case it freaks out from withdrawal and the scare tissue comes back full...

I am currently being looked at for a drug infusion that can help with the regrowth of bone mass. I can't remember it's name at the moment. But I'll try and find out... but I do take everything I can...

Hello Everyone! Here is my WG'S story.

- February 1999.
A family trip to a cold thawing beach to locate rocks for the framing of a small rock garden for my mother. This would turn out to be the...

Well, soon to be husband. Same difference. ;)

Mindy♡

Hummm. Not an option sadly for two reasons. My husband is fixed. Lol and more importantly my osteoporosis won't allow it.

Mindy♡

Hello! On May 19th I will be celebrating my 15th anniversary since being diagnosed with Wegeners. I would like to do something special for myself to commemorate my strength and success with this...

Hello! On May 19th I will be celebrating my 15th anniversary since being diagnosed with Wegeners. I would like to do something special for myself to commemorate my strength and success with this...

Added you. :) which you already know... lol

Mindy♡

I actually wanted to help others. That's why I joined the forum. To pass along any advice I can. 15 years is a long time to have Wegeners... I'd like to put it to use. :)

Mindy♡

Yay! Mitchell! Welcome!

Mindy♡

Yes 4 besides me. I've actually messaged one a few minutes ago who lives a few streets over telling him about this forum. :)

Mindy♡

Oh. And feel free to add me to Facebook if you want.

Mindy N MacDonald. My profile picture is the same as the one I have on here. :)

Mindy♡

Hello! I've just joined this forum today as well. However I'm a Wegeners vet. ;) I'll be celebrating my 15th year anniversary on May 19th. My Wegeners was also localized but in my lungs. Due to it...

I live in a very small town of a few thousand people and I personally know 4 other Wegeners survivors from my town. New Brunswick is not all that from me... maybe a 4 hour drive. :) I hope to meet up...

Thank you! I was DX when I was just 16. :)

Wouldn't change a thing!

♡

Mindy♡

Oh goodness no need to be sorry. I personally see WG'S for me a blessing. I've become the woman I am today thanks to this disease. May 19th I will be celebrating my 15th year anniversary since...