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Type: Posts; User: ozterry

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  1. I was on 1000 mg steroids in infusion form for...

    I was on 1000 mg steroids in infusion form for three days initially, before reducing to 100 then 50, then slow reductions over 6 months down to 10. I got as low as 7 mg but had a flare so now back on...
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    You are never alone here. As the others said,...

    You are never alone here. As the others said, pred doesn't help with mood swings. Some days are ****, others are passable. Stop worrying what other think, you know how you feel. Enjoy the not so bad...
  3. Hi, I started on 50 mg prednisone, now down to 20...

    Hi, I started on 50 mg prednisone, now down to 20 mg, but I take cyclophosphamide tablets 150 mg daily. The ups and downs are there all the time for me at least. There is a lot of variations with...
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    Like many of the others, I reduced slowly from...

    Like many of the others, I reduced slowly from 50mg down to the 20mg I am on now, but I tend to blame the cyclophosphamide for the tiredness and lethargy. Some days are good and I make the most of...
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    Hi Angela, A warm welcome from Sydney. It is...

    Hi Angela,

    A warm welcome from Sydney. It is always sad that some else has this disease, but lots of understanding and empathy here.

    Terry
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    Yep, get it out! It is a very frustrating disease...

    Yep, get it out! It is a very frustrating disease and venting is definitely needed. I had advice from a Chinese friend: "You need to try and reduce your medications, you are taking too many tablets"...
  7. Hi, yes I saw the implant. I also have diabetes...

    Hi, yes I saw the implant. I also have diabetes but since it works on the AI system, it might just help GPA. :) Where there is life, there is hope!

    Terry
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    Well you are no longer alone, Merry...

    Well you are no longer alone, Merry Christmas:thumbsup:
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    Hi again, Don't worry, they will give him a...

    Hi again,

    Don't worry, they will give him a slow intravenous feed to stun everything, then they will work out medication issues. He will be OK now, as he will get the proper treatment. Enjoy your...
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    Hi Erica, Sad to hear in someone so young....

    Hi Erica,

    Sad to hear in someone so young. Trust in your rheumatologist, they are the coordinators. I would hesitate to make suggestions for someone as young as Caden. We have a few people on this...
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    Hi and welcome to our family. Like you, I am...

    Hi and welcome to our family. Like you, I am older than a lot of people on here (67) and thanks to a very astute ER, I was diagnosed quickly and received treatment before any real damage was done. I...
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    Hi Julia, Welcome to our world, glad you...

    Hi Julia,

    Welcome to our world, glad you finally got your story out. It is never easy coping, but the people here are a wonderful support, particularly because we all understand, particularly...
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    That's wonderful news, except about the bumper...

    That's wonderful news, except about the bumper damage. :) Hope you can finally settle now.
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    Well cry no more, you are safe now here with us....

    Well cry no more, you are safe now here with us. I was terrified when I was first diagnosed, searched Google and got terrified even more. Found this site and now feel "normal', in a Weggie sort of...
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    Hi Gigi and welcome. As others have said, don't...

    Hi Gigi and welcome. As others have said, don't believe everything you read. But yes the journey is not an easy one, but this is the best home you will find. Everyone of us is here to help, so ask...
  16. Thread: Nerve blockers

    by ozterry
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    My GP prescribed mine, originally 25 mg evening...

    My GP prescribed mine, originally 25 mg evening only; but now I take 10 mg morning and 25 mg at night.
  17. Thread: Nerve blockers

    by ozterry
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    I was given Endep for pain management for sciatic...

    I was given Endep for pain management for sciatic nerve damage, works well.
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    Be joyous, you helped save a fellow human being,...

    Be joyous, you helped save a fellow human being, well done, be proud and happy. We have little enough in our lives sometimes to be proud and happy about.
  19. We all experience a variety of symptoms leading...

    We all experience a variety of symptoms leading to the diagnosis of WG, but I agree that the sooner you have an evaluation, the better, for your own peace of mind, and for controls to take effect....
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    Well done, you should be very proud!

    Well done, you should be very proud!
  21. Thread: weak

    by ozterry
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    Hi John, yes weakness and lethargy are now just a...

    Hi John, yes weakness and lethargy are now just a part of my daily life. I do have swollen legs also, but recent fluid leakage has stopped; however I now need to use a walker whenever I need to go...
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    Yeah, OK sorry, feeling not so good today. :)

    Yeah, OK sorry, feeling not so good today. :)
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    I don't appreciate being hijacked. I was...

    I don't appreciate being hijacked. I was referring to support in terms of information on this disease and its issues, NOT on Australians and their attitudes to people in need.
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    Hi and welcome. What a story! You will find, as...

    Hi and welcome. What a story! You will find, as Pete said, many a kindred spirit and lots of shared support whenever you need it.
  25. Thread: Mesana

    by ozterry
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    I had a quick look at the link, thank you. I will...

    I had a quick look at the link, thank you. I will peruse it more later. When I was living in China, I spent nearly three of my seven odd years in Fujian Province, the home of Oolong tea, and a...
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