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Type: Posts; User: MikeG-2012

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  1. Replies
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    Re: Sinus Congestion

    Have you tried Alkalol ? Itís otc and has menthol etc in it. Nice to soothe the nose
  2. Re: 2019 International Vasculitis Symposium

    We're booked and will see you there Victor!
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    Re: Wg destroyed my life

    As much as I hate seeing any marriage drift apart, which is always tragic to both parties. I concur with drz on this one.

    Time and space might be in order and over time, maybe things can work...
  4. Thread: Checking In

    by MikeG-2012
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    Re: Checking In

    Coolief can be repeated every 6 months and no end until it stops working for longer periods of time.
  5. Thread: Checking In

    by MikeG-2012
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    Checking In

    Thought I would check in once. Life has been good. Knee is back to its old tricks, so I scheduled another Coolief procedure to deaden the pain centers in the knee.

    We got a puppy since I was...
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    Re: Strict Dieting

    The more active you become, the more muscle mass you will add on. I found out the hard way. Was losing about 5# a month (an lost a total of 60#) and summer 2017 came around and I was finding myself...
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    Re: Prednisone questions

    Kudos to Pete for already mentioning a lot of what I would say.

    You might want to pick up a copy of Coping with Prednisone It is a really good read for people taking the dreaded prednisone.

    I...
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    Re: Read it Like a Novel

    <sniffle><tear>

    You made my day!

    Thanks Masha!!!!!
  9. Thread: Hey all!

    by MikeG-2012
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    Re: Hey all!

    We've all been having a howling good time Bob! Nice to hear from you again. I hope you are well.
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    Re: Recent diagnosis as a "weggie"

    Take time to read the book "Coping with Prednisone". I think it is still available via Amazon. Great read for us that have to unwillingly be on pred for extended periods of time. It is written by...
  11. Thread: Retired

    by MikeG-2012
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    Re: Retired

    I'm glad that you can move on to a new chapter Victor. I am glad that you and your family can enjoy some great time together!!!
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    Re: Changing irrigation tools?

    We just need to move you somewhere WARMER and MORE HUMID Tom!!! LOL!!
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    Re: Gastro. Issues - Others?

    You are welcome! To make it stay cold, do a small serving of fruit and add crushed ice to it when blending. Water takes off some calories, but makes it cold and yummy.

    We get almond milk in...
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    Re: Gastro. Issues - Others?

    My wife and I have changed our diets the past few years, and about 6 months ago, I found a smoothie blender on sale for $40. We have been making fruit smoothies at least 5 days a week for breakfast....
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    Re: Knee Update - Coolief

    Should last 6-18 months, depending on the patient, and it can be repeated multiple times.
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    Re: Doctors in Charleston

    Way to go Kiddo!! I wish you the best of luck in your new endeavors!

    I hope you find the perfect healthcare team too!
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    Knee Update - Coolief

    As many of you know, my knee replacement was canceled in December and I did not have the time available to reschedule until the same time next year. I sought out alternatives to replacement and...
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    Re: Rituxan side effects better or worse?

    Yes, you are lucky! I'm jealous!! :tongue1:
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    Re: Changing irrigation tools?

    You are welcome to ask me anything in regards to nasal rinsing. I have done some radical things with the waterpik type devices and it has saved my nose from the wegs crusting.



    I had really...
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    Re: Changing irrigation tools?

    My ENT and I have a way around paying for the compounding of drugs with saline for nasal rinses. He prescribes both items (sterile saline bottles and antibiotic) separately and insurance pays for...
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    Re: Blood Tests - what to check

    For me, ANCA test has NEVER been an indication of disease activity. Learned the hard way that the test is NOT conclusive to a flare-up. Lost all of my sense of smell because of it back in 2013.
    ...
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    Re: Rituxan side effects better or worse?

    I have had RTX infusions since 2013. I think the count is now at 20. I usually have my infusions on a Thursday. I've found that I have a steroid infused insomnia night, the first night. The next...
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    Re: High altitude and Wegeners

    I agree with this completely. I use Neo-Synephrine Cold & Sinus Extra Strength Spray 0.50 oz (PACK OF 4)nasal spray. It is good for about 5-6 hours and is not as addicting as the 12 hour ones. ...
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    Re: Changing irrigation tools?

    Yea, my ENT is a rock star! I have to be in control of this stupid disease, its the only choice I have if I want to keep my nose as good as it is!!
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    Re: Changing irrigation tools?

    My ENT and I worked together with the wands from the sinu-pulse machine to learn to get one of the wands, without the tip, into my nose safely and get the water jet where the crusts are. He showed...
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