Search:

Type: Posts; User: gunnyl

Page 1 of 5 1 2 3 4

Search: Search took 0.01 seconds.

  1. Re: Vaccines and the immunosuppressed Webinar. Oct 28th 1500 BST, 1000 ET

    Did anyone attend this event? I was in the hospital with an upper respiratory infection and missed it.


    Sent from my iPhone using Tapatalk
  2. Thread: B Cells

    by gunnyl
    Replies
    1
    Views
    135

    Re: B Cells

    From all of my conversations with Rheumatology, go by symptoms if you know the specific symptoms as they relate to your GPA. You know your body better than any doctor and if you’re like me if I know...
  3. Thread: Third Vaccine

    by gunnyl
    Replies
    43
    Views
    2,175

    Re: Third Vaccine

    I went blind from WG before I was diagnosed. A really good ophthalmologist was able to restore my sight. Unfortunately a really bad infectious disease doctor misdiagnosed me with West Nile Virus and...
  4. Thread: Third Vaccine

    by gunnyl
    Replies
    43
    Views
    2,175

    Re: Third Vaccine

    Interesting analogy


    Sent from my iPhone using Tapatalk
  5. Thread: Third Vaccine

    by gunnyl
    Replies
    43
    Views
    2,175

    Re: Third Vaccine

    I had a conversation with a rheumatologist from my group at Walter Reed yesterday with regard to getting the booster vaccine. She basically told me that there are a lot of other sub-groups of T and...
  6. Autoimmune Summit Inaugural event October 15-16

    Ran across this on LinkedIn early this morning. Unfortunately this site wouldn't allow me to post from my iPhone so I had to go research the links again. I don't have any affiliation with any of the...
  7. Re: Some Doctors just don't listen and Nurses are priceless!

    I just did round two for the infection, the oral antibiotics I was prescribed leaving the hospital weren’t up to the task. Ended up having surgery to clean out the wound and close it and another...
  8. Thread: Third Vaccine

    by gunnyl
    Replies
    43
    Views
    2,175

    Re: Third Vaccine

    My experience has been that prior to the vaccine get a T-B Cell screen. If you don't have T and B Cells you will not develop antibodies from the vaccine. I got both vaccines in February and April. ...
  9. Some Doctors just don't listen and Nurses are priceless!

    So, I have had one hell of a month.

    I had an accident in July and fractured my leg and ankle in four places. I had a titanium rod inserted into the fibula and screws to pull everything together. ...
  10. Replies
    83
    Views
    22,318

    Re: Covid vaccins and WG

    I'm really disappointed in all of the responses I've gotten from doctors regarding the vaccines. I already replied to this about my experience with the vaccines. I got both, had zero T-B Cells so I...
  11. Re: Rituximab associated hypogammaglobulinemia:

    So, I got my results and I generated zero antibodies to the SARS-CoV-2 virus after getting both vaccines and a couple of weeks waiting.
    If you're vaccinated, it would be worth the expense to get...
  12. Rituximab associated hypogammaglobulinemia:

    For those patients on Rituximab it is very important to stay on top of your B Cell numbers post infusion. My experience has been that a lot of doctors don't take into consideration the long term...
  13. Replies
    83
    Views
    22,318

    Re: Covid vaccins and WG

    shankxonline - My doctors routinely do a T and B Cell screen of my blood. Rituximab wipes out your B Cells. Rituximab is a chimeric monoclonal antibody used to treat hematologic and autoimmune...
  14. Replies
    83
    Views
    22,318

    Re: Covid vaccins and WG

    Hi all,

    I got the first Pfizer vaccine last week. I'm 4 months out from my last Rituximab Infusion. My doctor ordered a test to check my B Cell levels and will order an antibody test after my...
  15. Replies
    83
    Views
    22,318

    Re: Covid vaccins and WG

    My Doctor told me to take it when it becomes available although there is no guarantee it will be effective for me. There ha e been no studies on immunosuppressed people so we are going to be the...
  16. Replies
    3
    Views
    3,012

    Re: Thank You Everybody!

    Glad to hear that you are doing well Chadwyck. Wishing you health in the new year ahead.

    Sent from my HD1907 using Tapatalk
  17. Replies
    83
    Views
    22,318

    Re: Covid vaccins and WG

    Great articles Alysia, thank you for sharing!

    Sent from my HD1907 using Tapatalk
  18. Replies
    83
    Views
    22,318

    Re: Covid vaccins and WG

    Natty,

    Wishing you a complete and speedy recovery.

    Ted

    Sent from my HD1907 using Tapatalk
  19. Replies
    83
    Views
    22,318

    Re: Covid vaccins and WG

    Any vaccine that utilizes T Cells to manufacture antibodies is not going to be good for anyone taking RTX as it depletes our T and B cells.
    The Moderna and Phizer Vaccines are utilizing mRNA to...
  20. Replies
    26
    Views
    13,199

    Re: Ear, Nose and Eye involvement.

    Prednisone can cause pressure issues in the eyes, WG can also cause pressure issues with the eyes.
    When you are on Prednisone you need to have regular visits with Ophthalmology to check the...
  21. Replies
    26
    Views
    13,199

    Re: Ear, Nose and Eye involvement.

    Are they just treating you with Prednisone?

    My issues started in my ears, destroyed the eustachian tubes. I eventually needed tubes in my ears although I am down to one tube now.

    You need to...
  22. Replies
    9
    Views
    2,369

    Re: Lowest dose of Rituxan for Wegener's ?

    I'm at zero pred between infusions until I get close then I use it as a bridge.

    Sent from my HD1907 using Tapatalk
  23. Replies
    9
    Views
    2,369

    Re: Lowest dose of Rituxan for Wegener's ?

    I'm at 500 every six months. I don't know that lower with more frequency would be optimal for GPA. Are there any GPA studies ongoing that you are aware of?

    Sent from my HD1907 using Tapatalk
  24. Replies
    1
    Views
    881

    Re: Accutane and Rituxan

    Personally I would speak to a good pharmacist about the combination. They are the experts on drug interactions.

    Sent from my HD1907 using Tapatalk
  25. Thread: Ear Wax

    by gunnyl
    Replies
    5
    Views
    974

    Re: Ear Wax

    A few drops of hydrogen peroxide will desolve the wax then flush with a little water. I use a syringe to flush them out.

    Only do this if you don't have tubes in your ears.

    Sent from my HD1907...
Results 1 to 25 of 119
Page 1 of 5 1 2 3 4