I believe the Pfizer Covid vaccine may have triggered my flare in June. I was doing exceptionally well before, had my shot on June 9, then had sudden lung/chest pain 8 days after the shot. I had new...
Type: Posts; User: Pmarsh
I believe the Pfizer Covid vaccine may have triggered my flare in June. I was doing exceptionally well before, had my shot on June 9, then had sudden lung/chest pain 8 days after the shot. I had new...
Thanks everyone. This flare has been quite a rollercoaster! Rituxan has kicked in and seems to be doing its job. I’m also taking 1000mg of cellcept. It’s the prednisone that’s killing me. I’ve had...
Thanks Alysia. It was a really tough week. I’ve never experienced anything like the prednisone induced anxiety. Just crazy hard. I’m on the meds to help keep this in check and I’m feeling much...
Thanks alysia. Interesting about vaccines and flares. Kinda crazy actually. I have also not heard about leflunomide before. Is it an rituximab replacement option for maintenance or flare treatment?...
Hi. I haven’t been on here for years. I was originally diagnosed in 2010 and did very well for many years. I’m now experiencing a tough flare up and have been for two months. It started a little over...
Hello,
It's been a while since I've been on this site. Sorry for only watching from the sidelines. This is another short update on the success of the Autoimmune Expedition (ski/climb/ride to Mt...
Thanks everyone! His name is Samuel. So far he's doing great and gaining weight like a machine. He's certainly a little miracle.
Hey Phil, I'm surprised I was on the national news. Thought it was...
Hi Everyone.
As many of you may recall, I was diagnosed with WG only a couple weeks after my wedding. This was one tough was to kick of a new marriage. I was far too sick to consider freezing any...
Yes. It certainly was this site and this group. I read about Cindy shortly after I was diagnosed and was struggling with my recovery. Her story made me realize that I could still take on big...
This is an article in the National Post (Canada) about the Autoimmune Expedition and the importance of online disease forums. In this case it's promoting the Arthritis Society of Canada's new...
Hi everyone.
I've finally got around to creating a post-trip video from my fundraising trip, the Autoimmune Expedition. It's a great look at the trip from start to finish. Here's the link to the...
Whew. I can't believe that I have almost completed the trip. I started on July 3 from Vancouver BC. Over the next 4 days I cycled to the base of Mount Rainier averaging 120 km per day. On the third...
The bike is loaded, the body feels pretty good, the weather looks great [but crazy hot]... now it's almost time to get rolling. Only a few days left until we ride out of Vancouver on our way to Mount...
Less than 2 weeks until the expedition begins...
This is my final fundraising push. So far I am almost half way to my goal of $14,411. I'm hoping to reach this goal by the time I accomplish the...
This is a nice feature article in one of the local Vancouver area newspapers. I'm hoping a little more publicity like this will help bring in more donations. Less than 3 weeks until the trip...
Hey Pete. So far I'm up to around $4500. Almost 1/3 of the goal. I'm hoping the fundraising part will pick up a little in the coming weeks as the trip approaches and I get underway. Some local media...
Thanks for everyone's kind words and encouragement. Stay tuned for the post trip video. It should be even better.
Please check out my promo video for the Autoimmune Expedition:
Link - The Autoimmune Expedition - YouTube
Just over 1 month to go until the trip begins....
Pete
I just finished putting together a promo video for the Autoimmune Expedition. I've shared it on you tube. This is my first movie making and you tube posting experience... but I think it turned out...
Hello again. I hope everyone here is keeping well.
I finally finished my busy season of work. Time to focus mainly on my trip and fundraising initiative. I'm happy to say that we're at over 25% of...
Hi Everyone.
Here's a quick trip and training update. It's exactly 2 months until I embark on this trip. Crazy how time flys! I've been doing fairly well with my training. The winter season is...
Wow! Awesome support from this community!
I can add Australia, Sweden, Turkey, Ontario, Prince Edward Island, California, Oklahoma, New York, Texas... and I'm sure I missed others. Thanks...
It's really cool that my trip Facebook page has "likes" from various parts of the world. Spain, France, India, Florida, Massachusetts, New Jersey, Washington, Alberta, Quebec, ... I wonder how many...
I thought I would give a brief update on how the Autoimmune Expedition is shaping up. The trip is scheduled to start in around 90 days. So far I've managed to raise just over $2000, but I'm really...
July 2013
1000 km of cycling (including a group ride event)
10,000 vertical feet of mountain climbing and skiing on one of the most prominent peaks in the US
GOAL: to raise close to $15,000...