Send you an private email :)
Type: Posts; User: Susan55
Send you an private email :)
Hello
Just got back from seeing the rheumy is surrey and she is NOT happy I saw Dr. Dehgan in Vancouver. :( she told me not to see her anymore and to stay with Dr. Dehgan as too many doctor's now...
Hi Lisa, Happy New Year to you and everyone else here on the site. I'm been out of touch for a while just trying to deal with dr's etc. I am still looking for a support group here in the...
Hi Ed
Not sure if your asking me or Martha :)
Love this poster you made ...I keep looking at it as my face is not getting puffy and the weight is coming on ..but hey nothing I can do but go with the flow.
Hey Marta
So happy to see your out having fun and enjoying life ! I've been to a place here in Surrey where you can see movies under the stars and it was fantastic and so much fun. I am so...
Hi Jaha
I am reading this post OMG I have someone who actually had/has what I am experiencing for 3 yrs now. I get pain so bad in my head, it quick sharp pains that just shoot all over my head,...
Hi Amy
I was in the same boat, waiting for blood work, CT Scan and waiting to see the right people to get an answer. For me the waiting game was worse then hearing I had GPA. Now for me it's being...
Good thank you for clearing that up for me :) hugs
Hi Pete
I am wondering if it OK to have a glass a wine once a week? Pharmacy said NOT to drink on MTX at all. Thanksgiving today and I would love nothing more then to enjoy my dinner with a glass...
Wow 20 yrs! that's such good news. There is hope :) I have limited gpa so I am hoping to be like you, let's just get this under control and be able to feel good and more forward once again. My...
Alysia,
Hi Alysia
I'm just wondering if I should increase the meds or wait until I go to the the lab (tomorrow) the Dr. wanted to see if med's were working or not. Not sure if it would show up in blood test...
Hi Alysia
Love the pic you posted...yes that feels like us weggies for sure and your right, just walk away from people and their comments. I understand some are just wanting to help, but when...
Hi Marta
Wow, I can't begin to imagine being on such a high dose and hope and pray I don't have to go there one day. When I was just taking 50mg my head and thoughts were not clear in anyway. I...
Hi Marta
I totally agree with you and I've been thinking to my self wow she is dropping the dose way to quickly. When I would take it for COPD, it would go down by 5mg etc etc.
And I have to wait...
:( oh wow, I am so sorry you had to hear this from her. I find it even harder when it's family. but we just stay strong and stand stall
Hi Marta
Yes, I got your msg, thanks ;)
I totally agree "Power is Knowledge". I will be calling you at the end of the week if that is OK? My son comes tomorrow from San Fran I am so excited to...
I'm reading all the post here to learn about weaning. Am I reading it correct, you and other's were taking 100mg a day of steroids? or was this weekly?
Wow, still so much to learn.
I am trying to understand how you go down to say 4mg when the pills come in 5 mg dose? Something I am not understanding or miss reading. I started at 50 mg Sept 12 and down to 30 for the last week...
I will be grateful to read about your techniques of weaning pred. I still have no idea how long I will be on them for (never explained to me from Rheumy) started at 50 mg sept 12 and down to 20 mg...
LOVE IT Marta
thank you for sharing this is going to help me.
love your smiles and your so beautiful
I just had a friend last night tell me that this just isn't a real disease and if it was her she wouldn't take chemo med's. Well between the side effects of the steroids and my own anger I was not...
So, how does one know if it has gone to the head? The reason I am asking is for the past year or so I get sharp pain in my head (not headaches) different just sudden sharp pain. I had brain aneurysm...
How did the interview go? I've heard it's hard to get a Nexus pass from so many people, so your one of the lucky one's :) When I first moved to Canada from California in 78 I loved going to Pt...