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Hi Erin,
First, I am so sorry to hear of your son and the Wegener’s diagnosis. It is truly a frightening and serious disease.
After many months of trying to solve what was going on with me I...

Thanks to all who provided me with valuable input on the Prednisone "weaning.

Ken

I was diagnosed with WG on 4 Nov 2011 and was given the standard drugs. (Cyclophosphamide,prednisone, bactrim, and azathioprine.)I achieved remission on 6 June 2012.
Over the months I was able to...

Thanks for the info Don, I ordered the sample pack today. Looking forward to trying and reviewing the product.
Ken

Sangye, I had a chest x-ray recently which did not show any visible problems. However, during the review of the chest x-ray he did indicate that a chest CT scan may be the next item if the shortness...

Greetings to vdud and all,
Although I am currently in no pain, I have also lost my ability to do anything more strenuous than slow walking for very short distant. Anything above that and I am...

Al, you are absolutely correct on the 50mg dosage of Azathioprine. Due to the fact that my Dr wrote it for 75mg I was given Azasan a non-generic substitute for Azathioprine. I am currently taking 2 ½...

No, do not appear to have any lung problems.
Ken

Hi,
It appears I made one milestone yesterday in the WG war! I achieved remission and was taken off the Cyclophosphamice. I started Azathioprine this AM and am hoping for little side effects. I will...

Thanks to all for your valuable inputs. Now I know I wouldn't have any nornal problems tomorrow during my dental appointment.
Ken

Al,
Thanks for the input. That's what nice about this site. Always great inputs/advice.
Ken

Hi,
I am currently on Cyclophosphamide, Prednisone and Bactrim for my diagnosed WG. I chipped a tooth filling tonight and will have to go to the dentist for repair. Has anyone here had to take...

Drz, Your story was absolutely amazing. Believe me, whenever I start to feel sorry for myself, I will get your letter out and re-read it. Thank you for sharing with such a difficult time in your...

Thanks Sangye, I will bring it up with my Dr. on my appointment this week. Also thanks to all that submitted inputs on my question.
Ken

Thanks to all that replied to my “foot numbness” question. Looks like it something I have to live with.
Ken

Thanks Annekat, I submitted my name of the map. Hopefully, someone from Spokane, Wa will answer.
Ken

Greetings to all,
I was diagnosed with WG in Nov 2011 and am currently on the Gliepiride, Prednisone, Omeprazole, Cyclophosphamide, and Bactrim. Apporx. 6 weeks ago I started getting a numbness...

Jim, absolutely no apology needed. Believe me we had as many “loonies” stationed there as were living around the base. Like I said, I loved the 4 years my family and I spent in your country. ...

Thanks Jim,
Love your humor. Spent 4 years in Milldenhall with the USAF and loved it.
Ken

Thanks Sangye,
I have read many of your posting and have learned a lot of valuable info. Yes, I only wish I were closer to some of the larger hospitals that spcialize in WG. My Dr. (Nephrology)...

Al,
I started with 60mg of Prednisone and am currently down to 20. I gained all the weight I had previously lost before I was diagnosed and then some!! (Got the “moon-face and big gut). A few...

Anne,
Thanks for the reply. Although new to this board I continue to be impressed with the knowledge I have learned from reading the comments. Hopefully, after one year you are close to...

Best of luck in finally having the surgery. I am sure you have waited a long time for this procedure. I don’t blame you for being a little worried as I certainly would be as well. Keep the faith...

Thanks for the reply. I am looking forward to finding anyone from the Spokane area. Best of luck with our WG battle. Ken

Thanks and the best of luck with you as well