Hello Alan! Welcome!
My Wegs is/was just upper respiratory and my onset of symptoms were January 2018 with going on Methotrexate, Folic Acid and Prednisone, at end of March, once diagnosed. It is a...
Type: Posts; User: ShellLeighScott
Hello Alan! Welcome!
My Wegs is/was just upper respiratory and my onset of symptoms were January 2018 with going on Methotrexate, Folic Acid and Prednisone, at end of March, once diagnosed. It is a...
Hi Pete! How are you doing? Still in Ohio? I hope your Wegs is remaining at bay!
Take care!
hahaha Peter! love this post and yes I know I am seeing it quite late. I did not hit 50lbs! it stayed just under at 49! sooo close! But I am back on track and encourage everyone to know just watch...
Hello Don and everyone!
It has been a very long time since I have been on here but I think about this support chat all the time. The most un-exciting things I have been dealing with are...
Nice to meet you Peter! Thank you for your advice and encouragement. I hope you are well at this time!
I am on just 5mg of Prednisone currently! So weight loss is possible. My ravenous hunger was...
I have gotten the Flu shot every year since being diagnosed in 2018 and in 2019 got my first pneumonia shot that is good for 5 or 10? years if I recall correctly. Prior to 2018 I had never gotten the...
watersedge
Hello, thank you for this share because I will now always carry with me a knowing to be on constant alert of the sneaky side of this disease and to stay vigilant in my care and...
Hello friends,
I am reading all your posts and appreciate the conversation. I am afraid of dying since I was a small child and that has deep down never changed I guess and my gut reaction to the...
haha Richard! I do feel the weight gain piece of this too; I gained 25lbs early on from prednisone.
Thank you so much for the feedback of the meds being a frustrating part of this. It's hard to...
Hi Brit!
I can relate to the frustration of Wegener's 100% and I am sorry! For me it has been constant with new/different symptoms throughout my 2 1/2 years and at this point I look at it like...
Hello Don ~ Thank you so much for the name of your doctors at Mayo! And I am certainly up for the challenge and persistence of getting in to see the specialists as I learned very early on! And right...
Hello Don, if you are still on this forum ~ who is/was your doctor at Mayo Phoenix? This may be a great option for me in my pursuits of a specialist that is very familiar with treating Wegener's...
Hello friends,
My name is Michelle from Phoenix, AZ. I have been on the whirlwind Wegener's adventure that started in January 2018 when I was 46 years old. I was diagnosed very early thanks to an...