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Type: Posts; User: Librarian Levi

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  1. Replies
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    Re: New Introduction

    Welcome, Hope!

    Living through a chronic illness is one of those unique experiences that can seemingly only be understood by others with similar life challenges. The diagnosis is like a shorthand...
  2. Re: Your experience with the healthcare system when you first began suffering from GP

    Your story resonated with me a great deal. Especially:



    And I particularly agree with:



    Doctors I worked with initially had no experience with GPA, were hesitant, and unyielding when a...
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    Re: Newbie Introduction

    Just a "me too": I've always been a face toucher, resting my head in my hands, biting my nail cuticles...all bad habits that have been hard to be aware of and stop.

    I work in a public service job...
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    Re: Introduction and Story

    The cardiac involvement is the biggest lingering question and concern for me. I had never had heart issues until the height of my GPA symptoms and ailments which at the time were not diagnosed. The...
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    Introduction and Story

    I’ve been a lurker of this forum since being diagnosed and while I’m still figuring out how to live with GPA and how to share my story of grappling with a rare life threatening chronic illness, I...
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