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Hi whatthewhat

Thanks so much for your feedback.
I feel that the anemia must be from the Wegener's but I'm getting a second opinion from a doc at the Vasculitis Clinic in Toronto next week....

Hi Anne,

Hope you find out the cause of your anemia this time around & hope it's not serious!
Take care,
Jacqueline

Thanks Jerry :)

Thanks Lisa :)

Thanks Lisa,

I'm seeing Dr Christian Pagnoux at the vasculitis clinic at Mt Sinai next week for a second opinion. Maybe he'll have some idea of what's going on.

Thanks Rose :)

Hi Alysia,

Yes my doc thinks I'm flaring. I'm on 10 mg Prednisone, 200 mg Imuran. My RDW is high, lymphocytes are low which is to be expected from the Rituximab, Hematocrit & RBCs are low, MCV &...

Hi elephant,

Yes this was my first Rituximab. My kidneys are fine so far. Maybe that's what my rheumatologist meant when she said severe - that it's severe if the kidneys are involved.
Thanks...

Hi,

My Hgb has been slowly dropping over the last month & a half. Other CBC counts are abnormal too & from googling it seems my red cells are being destroyed faster than I can make them. I...

I am ANCA negative too. Was having breathing problems for 2-3 years before I finally got an ENT to listen to me & she did a CT of my throat & found the stenosis. I'd also had frequent nose bleeds &...

Hi Lisa,

I live just outside Toronto & I do go to Mt Sinai for my surgeries & to see my rheumatologist. They have a vasculitis clinic there. My ENT is Dr Eric Monteiro & he's been wonderful & I...

Hello,

I just recently joined the forum but I've been lurking for the past year & thought I would introduce myself. I was diagnosed with GPA in Dec 2016 after 3 years of symptoms. I was finally...