Search:

Type: Posts; User: Rachel_Elise

Search: Search took 0.00 seconds.

  1. Replies
    8
    Views
    18,307

    Thanks for sharing your story! I appreciate your...

    Thanks for sharing your story! I appreciate your attitude - I try and stay positive as well, even when I am feeling overwhelmed by the myriad of pills, doc appointments, and random aches and pains....
  2. Replies
    1
    Views
    1,162

    Feeling Cold/Chilled Frequently

    I have always been a warm bodied person. I'm usually hot all of the time, but recently I have found myself getting chilled when others around me are warm. It's especially bad in the mornings. This...
  3. Replies
    5
    Views
    3,169

    I didn't think the plaquinil was doing much for...

    I didn't think the plaquinil was doing much for me at first either. It doesn't do much for my joint pain, but it does help with my energy levels quite a bit. I know they use it for lupus quite a bit.
  4. I would highly suggest seeing a Rheumatologist...

    I would highly suggest seeing a Rheumatologist first. They will be your go to doc and help your coordinate any biopsies/treatments that you need. A Rheumatologist should see you with out a diagnosis,...
  5. Replies
    13
    Views
    43,819

    I was 16 when diagnosed as well. I had suffered...

    I was 16 when diagnosed as well. I had suffered from bad sinus infections for awhile, but then started getting random joint pain and an elevated SED rate. While waiting to see a Rheumatologist I...
  6. Replies
    13
    Views
    43,819

    Thanks - Ill keep that in mind. I have pretty bad...

    Thanks - Ill keep that in mind. I have pretty bad fatigue problems as is.
  7. Replies
    13
    Views
    43,819

    I'm worried about the hair loss. I had terrible...

    I'm worried about the hair loss. I had terrible hair loss with cytoxan - to the point I had to just shave it - and have alopecia problems already. Thanks for the input!
  8. Replies
    13
    Views
    43,819

    Methotrexate vs Imuran?

    Hello,

    I am currently taking Prednisone and Plaquinil for to keep my Wegener's symptoms in check. However, I have been trying to ween down off of Prednisone (pre-diabetes and just over all...
  9. Replies
    5
    Views
    3,169

    Living with Wegeners for 20 years

    Wow - I am just sitting down to write this, and realizing this year marks 20 years that I have been living with Wegeners! That's hard to wrap my mind around!

    I was diagnosed in 1996 at the age of...
Results 1 to 9 of 9