Thanks for sharing your story! I appreciate your attitude - I try and stay positive as well, even when I am feeling overwhelmed by the myriad of pills, doc appointments, and random aches and pains....
Type: Posts; User: Rachel_Elise
Thanks for sharing your story! I appreciate your attitude - I try and stay positive as well, even when I am feeling overwhelmed by the myriad of pills, doc appointments, and random aches and pains....
I have always been a warm bodied person. I'm usually hot all of the time, but recently I have found myself getting chilled when others around me are warm. It's especially bad in the mornings. This...
I didn't think the plaquinil was doing much for me at first either. It doesn't do much for my joint pain, but it does help with my energy levels quite a bit. I know they use it for lupus quite a bit.
I would highly suggest seeing a Rheumatologist first. They will be your go to doc and help your coordinate any biopsies/treatments that you need. A Rheumatologist should see you with out a diagnosis,...
I was 16 when diagnosed as well. I had suffered from bad sinus infections for awhile, but then started getting random joint pain and an elevated SED rate. While waiting to see a Rheumatologist I...
Thanks - Ill keep that in mind. I have pretty bad fatigue problems as is.
I'm worried about the hair loss. I had terrible hair loss with cytoxan - to the point I had to just shave it - and have alopecia problems already. Thanks for the input!
Hello,
I am currently taking Prednisone and Plaquinil for to keep my Wegener's symptoms in check. However, I have been trying to ween down off of Prednisone (pre-diabetes and just over all...
Wow - I am just sitting down to write this, and realizing this year marks 20 years that I have been living with Wegeners! That's hard to wrap my mind around!
I was diagnosed in 1996 at the age of...