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Hi Christine,
Sounds like hubby is in panic mode and very understandable as it is all so new and scary, but this is distroying your young family, he needs to consult his medics on precaustions, it...

Hi Val,

Had 2 Retinal tears and surgery on same , left with extreme Dry eye, use TheraTear liquid gel and Organic Castor Oil, I find the C.Oil gives great relief, and ok things are blurry for a...

Hi Christine,

Great that you found this informative site, and lots of support here. When I was first in hospital ,it was for six weeks, and I was hemorrhaging from everywhere, and only for the...

I agree with all the above seem to me that the more experienced Drs. hit WG, as hard as they can in the begining(without killing you) and when its damped down start to taper off the doses, you seem...

I was diagnoised in 1996 and was into remission with 18 months, but caught a flu, and had to go back on meds. for another six months, and since then no meds. at all. So fingers crossed for your son...

Hi Marta,
Well done, first year or two can be difficult, but leads to better things, you have a bit of catching up to do with me at 17 years, and believe it or not I consider myself Lucky, Lucky to...

Hi Son,
It good to get the diagnosis and get treatment up and running, pity your Mum has been messed around for 18 months, there really is not enough awareness of WG in the med.schools and that...

Hi Alysia,
Seeing as there is nothing new in your X-ray, how about looking at your surroundings, I find strong smelling washing powder can start me coughing, air fresheners, too much dairy, Pringle...

Hi Teri,
I am in Ireland, and have had Wg, for 17 years, was on much the same treatment as you and it took 18 months to 2 years to get into full remission. Have to say I had great improvement in my...

CarrieG,
My heart goes out to you and your son, so young at least I was 40 when it happened, but now you know and I am sure you have passed on some of your fighting spirit to your boy, and with all...

Thank you all for your warm welcome,

I attend the hospital once a year , and have all my blood tests done a month before that so the results are in. My consultant immunologist is not very...

Hi Alysia,
I have been in remission for 15 years, and am not on any medication of any kind. After speaking to Marilyn all those years ago, I developed a positive mental attuide, self hypnosis, I am...

Have just found this site after many years in the wilderness.
I was diagnoised in 1996 and WG made it presents in my live very fast, 2 frozen shoulders, nose bleeds, and incredible joint pain in all...