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Type: Posts; User: vickivee1961

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    Re: I might have Wegeners or not...

    My first symptom was my eyes in 2016. Attributed to allergies. Then frequent lung issues, bloody urine. All attributed to something else. Finally diagnosed in January of this year after open lung...
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    Re: Question about disability

    Thanks!! That thread has ;lots of info.
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    Question about disability

    I guess this is aimed for US members of the group. Has anyone had any experience applying for disability with Social Security? In looking, I see WG/GPA as one of the listed adult ailments that...
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    Re: Confirmed Diagnosis

    I'd had various symptoms for a year or two. During the months before my diagnosis, I started have a lot of breathing issues and chest pain. My lungs and kidneys were involved. I've weaned down...
  5. Re: Your Blood Cell Size May Help Predict Poor Granulomatosis with Polyangiitis Outco

    On my first visit to the Rheumo I took my recent blood tests from my GP and the red blood cell size was the only thing on it that was in normal range. Everything else was out of whack. I'll check...
  6. Re: Hello! Freshly diagnosed, New to the Forum, Here’s My Story.

    Love your response about the moon face! My face is currently the size of Texas. I do very little to it. Makeup, etc. I keep hearing my grandmother say you can’t make a silk purse out of a sow’s ear....
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    Re: Recent diagnosis as a "weggie"

    No. On my first follow-up, my numbers looked good enough that he dropped it to 50 a day. I have a followup once a month and Iit's my understanding that he'll be dropping it some at each visit. ...
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    Re: Recent diagnosis as a "weggie"

    Will do! Immediately. Hoping my doc will drop to 40 a day when I see him on the 23rd. However, dropping from 100 to 50 didn't make much difference. At times, it seems worse. Thanks for the info!
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    Re: First Major Relapse

    I’ve had two infusions of Rituximab so far. I tolerated it very well so far. My numbers have improved. I was able to discontinue a iron pills and oxygen at my first follow up appointment. I’m so...
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    Re: Recent diagnosis as a "weggie"

    No! I usually only get about 5-6 hours. I stay up late or can’t sleep and then wake up really early. Usually I’m starving. Lol. I went from diabetes controlled with 10 mg of Glipizide to 5 shots a...
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    Re: Recent diagnosis as a "weggie"

    I've really never been sick so I've definitely struggled with letting someone help me do things I'm just not able to do right now as well as patience in my recovery. Fortunately, I'd already...
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    Recent diagnosis as a "weggie"

    After 2-3 years of various ailments, attributed to other things (allergies, kidney stones, pneumonia/bronchitis), I was officially diagnosed with Wegener's in mid February after an open lung biopsy. ...
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