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    Reg- Marriage Alliance

    Hello everyone,


    I am from India Bengaluru.


    I am seeking some guidance regarding a delicate matter. 14 years ago, my now 27-year-old son was diagnosed with GPA. He is completely stable and ...
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    Re: Decrease in Immunoglobolins (IgM, IgG, IgA)

    Hi Alisya

    With the up in steroids there is some decrees in protein levels, IgG has not improved, as per Dr once the B cells starts populating IgG levels will comeup means as long as RTX is...
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    Re: Decrease in Immunoglobolins (IgM, IgG, IgA)

    Hi Alysia

    Good to know about your RTX plans,
    Next week i have appointment with Dr. have to repeat IgG test and see what plans he suggests, will update.
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    Re: Decrease in Immunoglobolins (IgM, IgG, IgA)

    Hi Alysia

    Thanks for your reply, His creatinine is in normal, Usually his flare indicator will be up in protein and inflammation in eyes which we will be monitoring once in two months and review...
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    Re: Decrease in Immunoglobolins (IgM, IgG, IgA)

    Hi
    This is nagesh my son nischal is facing the same problem, He is on Rituxan for maintenance since 4 years recently his protein in urine is up and we are suspecting of a kidney flare, he is on...
  6. Re: Does NHS in UK cover for students of other countries?

    Thank you for your time and information.
  7. Does NHS in UK cover for students of other countries?

    Dear Friends,
    I am Nagesh, from Bangalore, India. My son Nischal, now 23years was diagnosed with ‘Wegener’s granulomatosis’ when he was 13 years old. Now he is on maintenance...
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    my son had remission induction with rituximab 1gm...

    my son had remission induction with rituximab 1gm two time in a gap of 15 days,Further he is on maintenance with rituximab 500mg once in six months, which he completed two cycles.
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    hi Carrie Very sorry to know about your...

    hi Carrie
    Very sorry to know about your daughter's condition. my son was also diagnosed for wg at the same age, I can understand your feelings.
    Be confident during jan this year my son had a flare...
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    Poll: my son has wg since 7 years, on rtx for about 3...

    my son has wg since 7 years, on rtx for about 3 years twice for remission induction for a flare and once for maintenace. further, the planned cycle is once in 6 months for maintenace for about two...
  11. Hi Adith, I am Nagesh from bengaluru, my son...

    Hi Adith,

    I am Nagesh from bengaluru, my son has WG since 6 years, you can call on my mob 9341215692
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    Rehumatologist treating my son earlier two years...

    Rehumatologist treating my son earlier two years back used to say Rituximab should be reserved to future relapses,
    and maintenance with Azoran.
    now, he is of the opinion he will give Rituximab for...
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    Alysia really it is good idea, we should ask for...

    Alysia
    really it is good idea, we should ask for RTX for remission induction and RTX for remission maintenance both.
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    my son 19 year old 7 years back diagnosed with...

    my son 19 year old 7 years back diagnosed with WG, For remission induction he had Cyclosposmade six monthly infusions, there on on aza for maintenance,
    had kidney flare 3 years back took 2 infusions...
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    Hi, My son also diagnosed during the year 2009,...

    Hi,
    My son also diagnosed during the year 2009, He had rituxan to control a flare in 2013 and 2016, In 2016 It was a horrible flare affecting kidneys rituxan controlled it well, Now, our...
  16. Thread: Rituximab

    by nagesh
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    Thanks for the replies, Rhuematologist advised...

    Thanks for the replies,
    Rhuematologist advised to up the steroids to high dose considering it as a big flare, shall be meeting him again after two weeks with repeat lab tests.
  17. Thread: Rituximab

    by nagesh
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    Hi whatthewhat He is 19 years old

    Hi whatthewhat

    He is 19 years old
  18. Thread: Rituximab

    by nagesh
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    Thanks Pete Point noted, They are planning for...

    Thanks Pete

    Point noted, They are planning for kidney biopsy.
  19. Thread: Rituximab

    by nagesh
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    My son diagnosed in 2009 with involment of...

    My son diagnosed in 2009 with involment of kidneys eyes joints and skin,was on 6 cyclo infussions followed with azoran, bactrim & pred fully off symptoms, in 2013 had a flare in eyes and kidneys anca...
  20. Thread: helooooo

    by nagesh
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    Hi, Neha sorry to know that,you were...

    Hi, Neha

    sorry to know that,you were hospitalised for hi fever,
    good, you are back in to forum, me and my wife were thinking of you many times.
    you are not alone, be positive.
    friends and...
  21. Thread: helooooo

    by nagesh
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    Hi, angle really happy if i could bring a...

    Hi,
    angle

    really happy if i could bring a smile on your face, well said god will be watching, leave it to him,
    for God sake never bring suci___ thoughts. no one is alone we have to fight...
  22. Thread: helooooo

    by nagesh
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    Hi angle no no it is not the answer for any...

    Hi
    angle
    no no it is not the answer for any thing, you should never think of it ,
    sure, you will come out of this situation, think positively. keep sharing
    your feelings, believe in god.
    plz...
  23. Thread: helooooo

    by nagesh
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    Hi angle, plz console yourself, you are...

    Hi angle,

    plz console yourself, you are passing through tough time, be confident you will over come, if your doc's are advising rituximab go for it, it is a wonder drug
    my son recently had it for...
  24. Thread: helooooo

    by nagesh
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    hi, sorry to know about your condition, right...

    hi,

    sorry to know about your condition, right doctors can help you to over come, do not give up hope, i live in bengaluru india my son 18 years old got diagnosed 5 yrs back, where do you live in...
  25. Hi, as of now he do not have any other symptoms...

    Hi,
    as of now he do not have any other symptoms other than protein in urine rising, last week to this week again there is increasion in protein,
    Dr asked to check for anca and said to wait for one...
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