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  1. Replies
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    Oh gosh, when I had foot drop, I fell down so...

    Oh gosh, when I had foot drop, I fell down so much they gave me a foot/ankle brace! Luckily, my first few weeks of treatment w/pred and mtx reversed the foot drop, but I got to keep the numbness,...
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    I still have problems getting in every day, and...

    I still have problems getting in every day, and then the last dozen or so times I've tried to post, I hit the "Post Quick Reply" button, and my post disappears forever. It's frustrating. ...
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    Ugh. That means I've only got until April for...

    Ugh. That means I've only got until April for mine to regenerate (that will be 2 years from when I first developed the neuropathy). It's not looking good. I agree - the neuropathy is annoying (and...
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    Hooray!!! Such good news! How's it going now...

    Hooray!!! Such good news! How's it going now that you're a few weeks into remembering not to take the pred? :D
  5. Leigh, I was on CTX for 10 months, and they...

    Leigh, I was on CTX for 10 months, and they stopped it abruptly when I was dx'ed with PCP. The MTX has also made me lose some hair - nowhere near as bad as CTX, but it's definitely thinner on top...
  6. No worries - everyone's body reacts to drugs...

    No worries - everyone's body reacts to drugs differently! CTX literally almost killed me - it also made me feel worse than the WG made me feel, made me sterile and made all my hair fall out, to boot!...
  7. I think at this point I'd wait to talk to him in...

    I think at this point I'd wait to talk to him in person. If it were me, I would bring up treatment with Rituxan. It seems to me like your WG is still active, if you're flaring every time you...
  8. Thread: Warts

    by ScreaminMeanie
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    2,351

    I couldn't agree more. Pain causes stress, and...

    I couldn't agree more. Pain causes stress, and we should avoid stress.
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    *waves at Al* I grew up in the south also. ...

    *waves at Al*

    I grew up in the south also. Hoppin' John* is a staple food for me, not just on New Year's Day!

    (*Ham hocks or bacon, black eyed peas, onions, rice, and whatever spices you...
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    I haven't even been able to get on the site in...

    I haven't even been able to get on the site in close to a week.
  11. Thread: Warts

    by ScreaminMeanie
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    I've had a few skin tags that I've had removed...

    I've had a few skin tags that I've had removed because they were large and/or in inconvenient places. The first time I had some removed, they snipped them off - no anesthesia of any sort. I was not...
  12. Thread: Warts

    by ScreaminMeanie
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    I don't get to stop mtx just yet, but I do get to...

    I don't get to stop mtx just yet, but I do get to reduce my dose again. I sure hope the warts start backing off soon.
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    As Al said, most likely the rtx hasn't had a...

    As Al said, most likely the rtx hasn't had a chance to do its magic yet. I know it's a small sample, but it seems to me the people here who've had the 4-dose protocol seem to be doing better than...
  14. Thread: Warts

    by ScreaminMeanie
    Replies
    20
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    2,351

    Warts

    Yes, another lovely side effect of WG meds - being immune suppressed allows the virus that causes warts to become more active. I remember having one small wart on a finger when I was in my 20s. Got...
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    This is very good to know. Thanks for posting.

    This is very good to know. Thanks for posting.
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    My doc warned me about this when she told me to...

    My doc warned me about this when she told me to start taking it, and checks my blood monthly. I suppose now that I'm off pred (and lowering mtx), I should try to get off the omeprazole. Right now...
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    I certainly wouldn't mind doing it again if I...

    I certainly wouldn't mind doing it again if I needed to, as long as I still have insurance. The hospital has really good food! LOL

    I'm on 20mg mtx, 0 pred, and am going in for labs on Monday...
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    I like your answer, Chris! I've done some...

    I like your answer, Chris! I've done some Googling today as well, and can't find any reason to delay my lab work. In fact, if I waited another week, it would be T-giving week, and I would be...
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    Probably after my next blood work comes back...

    Probably after my next blood work comes back good. I'm thinking of putting it off for a week since I had a flu shot yesterday, and don't want that to interfere with any of my counts. OTOH, I want...
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    15 mg is what she has told me previously. I'm...

    15 mg is what she has told me previously. I'm hoping she'll be okay with me going off it next April (1 year from rtx treatment).
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    I've noticed that my feet also get very cold,...

    I've noticed that my feet also get very cold, both in feeling and to the touch, when the pain/numbness is most noticeable. I just wish I could tell if it was getting better or worse!
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    Yes, I do take folic acid. Usually take a double...

    Yes, I do take folic acid. Usually take a double dose on the morning after I take the mtx, which I had previously found to help a lot, but not as much lately. So far, the nausea has gotten better,...
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    Since the injectible form is currently on...

    Since the injectible form is currently on intergalactic backorder, I had to take my weekly dose in pill form last night. It made me feel so bad, I had to go to bed early. Anybody else bumping up...
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    I'm so happy for you.......and so jealous!!! I...

    I'm so happy for you.......and so jealous!!! I wanna say goodbye to mtx, too!

    (Especially since there is apparently a nationwide shortage of mtx injectable and I have to go back to taking the...
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    What Sangye said. And yes, PN is a common...

    What Sangye said. And yes, PN is a common symptom of WG. Good luck with your rheumy this afternoon.

    Mine actually got worse for a few weeks after I started treatment (pred, mtx initially)...
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