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Type: Posts; User: howard

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  1. Replies
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    Re: Probiotics ? No Thanks..

    I just remembered that I was drinking a lot of a specific probiotic drink the Summer I had my first flare-up. I don't even know what to think of this. I'm hoping it was just a coincidence but now I...
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    Prednisone and diet

    Hi all,

    I'm currently on 60mg/day of prednisone and I want to eat everything I can get my hands on all day and night long.

    I've read that prednisone increases water retention and inhibits...
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    Re: Problems with breathing

    Hi isi92,

    If this is really scaring you then go to the emergency room. Do you have a pulmonologist? Let him/her know what's going on right away.

    Don't be afraid. For all you know this can be...
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    11,571

    Re: Had lung biopsy yesterday, best news!

    Thanks Alysia. Yes, it was from the pred. When I had my blood work taken my white cells were really high so they wanted to biopsy the large mass before starting other treatment. Many doctors think...
  5. Re: Your experience with the healthcare system when you first began suffering from GP

    Hi Levi,

    Your experience sounds very similar to mine, and I can tell you're reasonable and polite. I consider myself pretty patient, reasonable, and polite which was why my experience was so...
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    Had lung biopsy yesterday, best news!

    So three weeks ago a CT scan revealed 4 masses in my lungs. One large one by my right shoulder (which was causing extreme pleural pain), one by the plural lining of my heart (more extreme pain), one...
  7. Your experience with the healthcare system when you first began suffering from GPA?

    This is more a post about the healthcare system and how it is trained to react to GPA and less about the disease itself. Each of us has that one doctor who saved our life and/or the family members...
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    Re: Just came back from sinus biopsy

    I know exactly how you feel, John.

    After a few weeks of everything being unbearable I finally went to urgent care for help because it felt really scary and serious.

    The doctor told me I had a...
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    Re: Just came back from sinus biopsy

    Hi all,

    The sinus biopsy came back suggestive.

    I had a 10/10 flare up with my eyes last night. They felt like they were being burned out of my skull.

    I'm currently inpatient at Upstate...
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    7,932

    Just came back from sinus biopsy

    Hi all,

    My blood tests haven't come back yet, but my creatine levels are normal. My doctor allowed me to start prednisone because my tongue and eyes are becoming enflamed, but I don't know if...
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    38,931

    Re: Just found out yesterday

    Hi Michelle,

    It feels good to have people to relate to. I'm sorry you had to wait so long to begin treatment, I can't imagine what it was like to go through that. It's really hard to not feel like...
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    38,931

    Re: Just found out yesterday

    Hi Alysia,

    I agree w/the faith sentiment.

    I haven't had much of a cough just shortness of breath (how much is from pain vs volume idk, it just hurts). I don't think the masses are IN my lungs,...
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    38,931

    Re: Just found out yesterday

    Hi Gilders,

    Thanks for being supportive and sorry for what you have to go through w/your kidneys.

    I'm feeling better now, I just had a really shocking episode and passed out for a while. My...
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    Hi Alysia, I just had a round of blood tests...

    Hi Alysia,

    I just had a round of blood tests yesterday where I assume my pulmonologist was checking for c-anca and pr3. I've had a CT scan, I'm not sure if he was able to identify it from that....
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    Just found out yesterday

    Hi everybody,

    After a month of worsening symptoms and battling uphill with doctors that something is seriously wrong, that I don't "just have a cold and sinus infection" I ended up in the ER 3...
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