First I was told I have Wegs, put on meds for several months, then told I do not have wegs, it's fibromyalgia, osteoarthritis and sinusitis. (Rheumy) Today I was told I do have "Vasculitis"...
Type: Posts; User: Wanda
First I was told I have Wegs, put on meds for several months, then told I do not have wegs, it's fibromyalgia, osteoarthritis and sinusitis. (Rheumy) Today I was told I do have "Vasculitis"...
Bob,
I am not taking any prednisone. I dropped 5mg every 7 days and then 2mg for a week to zero. I also quit taking the immuran. Where I live there are no wegs specialists but my new primary care...
drz, thanks for the reply. I think at this point I'm going to have to wait until I get sick again and start over. My Fibromyalgia is really flaring right now because of all this added stress. I will...
Anne, you are correct. My first rheumy did a c ANCA test and it came back positive so he put me on Septra for 30 days then MTX and prednisone. He didn't do a PR3 work up or biopsy. New rheumy did...
Hey Bob, I was on MTX for about a month but it gave me severediarrhea and I was sick for 4//5 days, then he put me on Immuran but my new Rheumy says it's such a small dosage why bother. (25mg a day)...
My sinus biopsy came back negative and blood work came back MPO/PR3 came back within the normal range ( <1 ) and new Rheumy said I do not have Wegener's. This is good news! However, I still have many...
Carrie,
Don't stress on the lab work, and as far as children go, I had my last one at 30. You have only been married a short time. Get to know each other and spend time together before you have...
This is the best web site I have found to explain what tests need to be done and what they mean.
Wegener's-Tests
I just looked up what "reflex panel" was and it says: The reflex automatically runs additional specific antibody tests included in the panel if the ANA is positive.
I had a lot of blood work done on the 15th and results are not back yet. I called the lab today because I thought it's been a long time and was told everything is done except the ANA that they had to...
I was also on methotrexate once a week but was sick for 4 days afterwards so he put me on Imuran which I am still taking
Symptoms were sinus infections, raspy voice, joint pain, double vision,cataracts, eye infections and inflamation, sores in mouth, shortness of breath, tired all the time. I have COPD which is under...
The ENT said my sinuses looked good and really didn't want to do a biopsy. I don't have any nodules. I told him I wanted it done anyways. Do I need to have nodules in my sinuses in order to have...
Wegener's-Tests
I found this to be very informative about what test should be run.
I am going to the ENT tomorrow for a sinus biopsy. I have stopped the prednisone and tomorrow will be the 5th day off it. I have had headaches and every joint and muscle in my body hurts but for...
Thank you all for your support and encouraging words. I have felt so lost and overwhelmed with information from the internet. Having moved and no insurance I had only been seeing my Rheumy once a...
Dale, I had CT done of the chest in August and it shows nodules but no one seems to be concerned. I was not happy with the Dr I had but was trying to stick with him because he seemed to be on the...
I had a biopsy of the lung and lobectomy in 1999. I think the biopsy was worse than the surgery, they kept me awake for it and I wanted to really inflict some pain on that Dr! I have read on here...
I have been reading on here for quite some time now and everyone seems so caring and kind. I don't know where to start. I had lung cancer 13 years ago and have COPD and was seeing a Rheumy for...