Hi Malissa,
Has your dad been able to find suitable care. When I first became ill with WG I was visiting my brother in Wollongong, the doctor on call at the hospital in Wollongong base hospital that...
Type: Posts; User: katwoman
Hi Malissa,
Has your dad been able to find suitable care. When I first became ill with WG I was visiting my brother in Wollongong, the doctor on call at the hospital in Wollongong base hospital that...
Thank you for your responses, my next Cyclo treatment is next week which I am not looking forward to it - I also have been experiencing lower back pain for the last month, been going to physio but...
Hello strangers, nice to be back with you all! I have had one hell of a ride with WG since last September and have a question after my long winded explanation :-)
Had been in remission and decided...
I had my flare 12 months ago with joint pain, tiredness and sinus problems, since methotrexate/pred & bactrim all the other symptoms subsided except the sinus areas and currently I am once again...
Oh yes Jack, I use the saline nasal wash a number of times a day, along with nasal irrigation douche and as steamer and plus lubricates etc - unfortunately nothing seems to hold back the bloody...
Thank you everyone for your comments, I know its not something to be taken likely but the pain I have even to touch my nose and then the blood and crusting is getting to me! I always sound like I am...
Hi everyone,
Long time since I've written, been busy with life and WG - after 12 months on Methotrexate and Bactrim my Rheumy has decided its not controlling my limited WG....I could have told him...
Hi Dee, sorry the nasal spray I was referring to is Fess non-medicated isotonic saline solution, so basically salty water.....I don't use the steroid based nasal sprays. Hope your appointment goes...
Thanks Lightwarrior, I will mention (nicely) how difficult it is to get past his receptionist, maybe he needs to communicate with his staff as well, i'm sure they don't know my situation.
...
Thanks Sangye, will steer clear of them, just wish I had more energy, I'm 36 but feel 63 sometimes!
So how do you deal with receptionist that rules the surgery?
A couple of months back I developed a cough that was so bad I was coughing until I vomited and couldn't speak because it aggravated the...
Hey Sangye, yes to smell would be a wonderful thing, sometimes I feel like getting a couple of drinking straws and sticking up my nose...lol
I am doing heaps better joint wise, but energy levels...
Please give Jack my regards, wishing him a speedy recovery!!
Kat
Yes Elephant, it would be wonderful to get off the Pred...it's not a friend I would like to keep in contact with ;-) hehehe. Yes i'm on 25mg of Methotrexate once a week, not a big fan of that one...
Hi Elephant, ENT wants me back on 20mg (was on 15mg hoping to reduce to 10mg). My sinuses are really taking a battering at the moment, it is so tender up there and like you I miss my sense of taste...
Hi Cindy, you are not alone, I haven't had a sense of smell or taste for a I don't know how long (although it doesn't stop me from eating..lol good old Pred), I find it really depressing when people...
Hi Lisa, I haven't posted for a while either, there never seems enough hours in the day and life does not slow down for anyone!
I totally understand how you feel about pred & methotrexate, I was...
Hi Christian, welcome to the group and I am sorry to hear you are feeling scared with the treatment you are receiving - some of us can totally relate to what you are experiencing with doctors but as...
Welcome Col, another Aussie on board hey!!
Any questions you have there will be sure to be a number of people that can help/support/advise!
Katwoman
[QUOTE=beeinformed;11486]Hi!
So do you think that all of the symptoms that I have described above can be attributed to wegener's?
Yes it definitely is linked to WG - the watery eye and constant...
Hi Beinformed,
I hope my comments are helpful to you, I know how terrible it is to suffer problems with your eyes, especially when they are swollen an painful, I hope your doctor can ease the...
Beinformed, I strongly suggest you see an ophthalmologist, preferably one who is aware of WG, I had the same thing happening and it turned into cellulitus in the tearduct, believe me if you think its...
Lol and to think I nearly bought a croissant for lunch today ... phew!! :-)
I was reading Anna's post about sticking the garden hose down the burrows and it remonded me of a story I read about here in Australia. We have funnel web spiders (they are poisonous) and they have a...
Hi Yvonne,
I too suffer from watery eyes, especially my left side (I have already had a DCR on both eyes a couple of years back and the tube keeps the tear duct open, as it was blocking and causing...