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Type: Posts; User: John S

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    Re: Ear, Nose and Eye involvement.

    Early prednisone caused cataracts, that were removed. My eyes used to feel like insects were gnawing on the back of them. I think the Rituxin killed them. My hands had sores all over them, the...
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    Re: Ear, Nose and Eye involvement.

    I am lucky enough to be on Medicare and near great teaching hospitals. I go to Loyola Hospital in Chicago and Cleveland Clinic. Prior to diagnosis I was treated by several specialists, Heart, nose,...
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    Re: Dull right rib pain

    Hang in there. I can't relate to your issue but you have my concern.
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    Re: Flu shot or not during COVID 19?

    I’m getting the heavy duty shot on Monday.
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    Re: Lowest dose of Rituxan for Wegener's ?

    I was just reduced from 1000 to 500. The latest infusion was early September. I have been 0 prednisone for over a year.
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    Re: Confirmed Diagnosis

    Dr. Villa Forte told me that my over reaction to exercise is probably not related to GPA. It really doesn’t matter what causes it.
    I recently bought an electric assist bicycle. I wear my heart rate...
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    Re: Confirmed Diagnosis

    I get Rituxin today. For the last month I have had three separate days of fevers. Each bout was after going on a bike ride. Temperatures up to 103+. No infection, no Covid, I’ve just read that fevers...
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    Re: Confirmed Diagnosis

    Once again I am a week away from Rituxin infusion and I find headaches and fatigue have been on the increase. I’m going to get this infusion in Chicago rather than Cleveland Clinic.
    I hope that the...
  9. Thread: Ear Wax

    by John S
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    Re: Ear Wax

    “Don’t put anything smaller than your elbow in your ear.”
    I don’t remember who told this but it’s good advice. I use hydrogen peroxide and a spray bottle called “Elephant Ear”. There are several on...
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    Re: Telling my story

    Welcome to GPA Highway. May your trip be long and fruitful.
  11. Thread: Statistics

    by John S
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    Re: Statistics

    Covid 19 has more issues than fatality rates. Some long term conditions to survivors are starting to emerge. The best thing is to avoid catching it.
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    Re: Retuxin infusion

    Like Masha, I can’t sleep right after the infusion. The next day I’m fine. In a few weeks, I it kicks in and keeps the symptoms away.
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    Re: Coronavirus and GPA

    I am taking the steps to get my next infusion locally. A Doctor at Loyola said that she will follow Dr. Villa Forte protocol and dosage plan. I’ll also start getting my monthly labs done again. ...
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    Re: Coronavirus and GPA

    Since I' was diagnosed I've always driven from Chicago to Cleveland to see Dr. Villa-Forte and get my Rituxin treatment. I stay at the Intercontinental Suites and enjoy the city a bit. My next...
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    Re: send good energy and prayers my way

    I usually have trouble sleeping after I get an infusion. I’ll have one night of restlessness and no other reaction. Rituxin has been my disease crusher. I’m so glad that it was prescribed to me.
    The...
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    Re: Coronavirus and GPA

    I've been seeing GOP advertisements asking people to protest the economy being closed.
    Before the country reopens there needs to be an effective treatment protocol and a vaccine.
    If they reopen...
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    Re: Coronavirus and GPA

    2662
    I would rather not drink Lysol
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    Re: Coronavirus and GPA

    The best filter is “STAY HOME”
    we have been sheltering for 7 weeks now.
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    Re: Coronavirus and GPA

    AS long as Trump doesn't get Americans to hoard Rituxin
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    Re: Coronavirus and GPA

    It took 12 months to get a SARS vaccine.
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    Re: Coronavirus and GPA

    https://youtu.be/e0-2XxgHIXkDrZ,
    please add “Stay the [email protected]!# at home” to your list
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    Re: Coronavirus and GPA

    Today marks 21 days of "shelter in place" for us. We have completed 4 jigsaw puzzles, watched the entire Marvelous Mrs. Maisel series and eaten all of our Twix bars.
    Don't get me wrong, I am...
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    Re: Coronavirus and GPA

    We learned that Walgreens allows shopping their store through the drive up window. The “convenience store” items there are pricier in many instances but it is nice. We told the girl in the window...
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    Re: Coronavirus and GPA

    I am skipping my labs this month. I had a Rituxin treatment on March 13th so I have been home bound since the 14th.
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    Re: Coronavirus and GPA

    I was scheduled to get a Pentamadine treatment this Thursday. I emailed one of my local rheumatologists and she will prescribe an antibiotic that I can take at home.
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