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Type: Posts; User: Gary L

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  1. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Hi Anne,
    Thanks for your message.Its good to hear from so many people.
    i hope life is treating you kinder now and you managed to reduce your meds right down.
    Will keep you informed if anything...
  2. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Morning Richard
    They diagnosed from both anca and pr3 .No kidney involvement yet and the lungs have only started to be an issue these last 4 months.
    I am waiting for an echocardiogram to determine...
  3. Re: GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropat

    Hi Pete,
    Thanks for input.
    I am lucky enough to be under the Rheumatology Hospital at Royal United Bath.
    A purpose built new wing to the main hospital with a team very familiar with GPA and other ...
  4. GPA with right sided pseudo tumour ,leptomeningeal thickening,peripheral neuropathy.

    Hello to all from 57 years young GPA victim.
    story started 2 1/2 years ago on vacation to Spain for intended 2 months.Fter 5 days hospitalised with severe ear/headache and right eye closed and...
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