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    Picture here: ANIMO: Barbara: 1953 - 2014...

    Picture here: ANIMO: Barbara: 1953 - 2014
    July 7th is Barbara's birthday, and also the day we married in Gibraltar (1986).
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    Dear Weggies, Thank you all for your kind...

    Dear Weggies,
    Thank you all for your kind thoughts.
    My poor Barbara has gone and I am lonely and sad. Today I am flying out to stay with one of our daughters for a couple of weeks.
    In Spain,...
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    Barbara Napier

    My beautiful Barbara died today after a long session with Wegener's and other horrible things. She was given so much strength by this forum that I wanted to send you all a 'group hug'.
    Be strong,...
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    If you are ever in Spain, you are welcome here...

    If you are ever in Spain, you are welcome here and we can show you a good time. This site has done so much for me, I would like to do something for you. love, Barbara
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    Trouble with dialysis

    I don't know if this fits in this category but it is as good a place as any. I knew I would need dialysis for at least 3 years now but it was always something off in the future when the doctor told...
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    Hi Debra, I stopped dialysis on Friday and most...

    Hi Debra, I stopped dialysis on Friday and most of the pills. My doctor is lowering my Pred 2 1/2 mgs every 2 weeks. I am now on 15mgs. I feel so much better and for the first time in months I feel...
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    They have also been reducing my Pred and I have...

    They have also been reducing my Pred and I have been getting terrible headaches.
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    Barbara is Back

    I have had a few very rough weeks, my kidneys shut down and I have had to go on dialysis, I got pneumonia and have pretty much been in and out of hospital since January. I wanted to thank you all...
  9. Thread: I'm home

    by Barbara N
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    I'm home

    I am now on dialysis for the rest of my life, a decision I was sure I would never make, but when they come to you and say you have a few weeks to live or you go on dialysis it kind of shakes you up....
  10. Thread: Barbara N

    by Barbara N
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    Thank you for your kind thoughts but my kidneys...

    Thank you for your kind thoughts but my kidneys have already atrophy-d so there is no hope of any recovery so I will have to learn to live with going to dialysis every other day for the rest of my...
  11. Thread: Barbara N

    by Barbara N
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    Barbara N

    Hi All,
    Thank you for your support and friendship here on the Forum, which means a whole lot to Barbara. She has been in hospital now for a week (here in Spain) with kidney failure and the doctor is...
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    Don-t forget Spain, we have two Weggies in one...

    Don-t forget Spain, we have two Weggies in one town.
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    Thanks for alll of the response. They did put me...

    Thanks for alll of the response. They did put me on bp medicince and if alll goes well, will do my treatment a week from now, -This week is full of internal medicines and kidney doctor and the WG...
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    You would be welcome here in southern Spain...

    You would be welcome here in southern Spain anytime and depending on hospital schedule I could probably go any where and meet up. It would be great to meet you and there is another WG girl living...
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    High blood pressure

    Has any one else had a problem with high blood pressure. I have always had low blood pressure and all of the sudden my blood pressure has sky rocketed into the danger zone. I haven't really changed...
  16. Thread: Infections

    by Barbara N
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    Can the cataracts come from the perd.?I have...

    Can the cataracts come from the perd.?I have cataracts now, not to bad but they will remove them whenever I have my next surgery.
  17. Thread: Infections

    by Barbara N
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    I live on vegetables, I don't know what I would...

    I live on vegetables, I don't know what I would do without them but now they are starting to cut out certain veggies and fruit because of the potasaium etc. Next week is a full week , sometimes two...
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    Lost strength

    I am feeling much better now. I was tapering my prednesone and when I went from 20 to 15 that is when I lost strength ,so I am back on 20 and I feel great. So I guess it was the steroids. I will keep...
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    That was very informative. I am a vegetarian but...

    That was very informative. I am a vegetarian but I didn't know about the dairy products.This came on suddenly and left just as fast so it had to be the change in Pred. I will google the side effects...
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    Thanks Debbie, they are going to put me in...

    Thanks Debbie, they are going to put me in hospital for a few days and remove the potassium from my system then something to flush out the toxins, it is all they can do since my veins are in such bad...
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    I have been lowering my dose of Pred5 mg a week....

    I have been lowering my dose of Pred5 mg a week. It was the day went from20 to 15 that I l,ost strength so the doctor put me back up to 20 and I feel great so I guess it was the pred.
  22. Thread: Infections

    by Barbara N
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    Hey me2 that was great information and I believe...

    Hey me2 that was great information and I believe it is the solution. It turns out that my veins are to smashed for dialysis ,I have had so many operations that my veins can't take much more without...
  23. I have been a vegetarian all of my life starting...

    I have been a vegetarian all of my life starting at age five but I'm not a vegan. I grew up on a farm and hand raised, cows, sheep, pigs and just about everything else and the idea of eating them...
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    Everything you said fits perfectly, I have been...

    Everything you said fits perfectly, I have been reducing my pred.my kidneys are practically not there anymore. I had my appt. with the nefrologo and she said I don't really even qualify for dialysis...
  25. Thread: helooooo

    by Barbara N
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    We all feel like that sometimes, welcome to the...

    We all feel like that sometimes, welcome to the forum, you will make lots of friends here and won-t feel so alone. Try to have a positive attitude because you can have lots of remission or...
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