Good to hear all is well, Pete! We are coming up on my 10 year anniversary in a couple of months!
Type: Posts; User: annekat
Good to hear all is well, Pete! We are coming up on my 10 year anniversary in a couple of months!
Happy Thanksgiving, drz! I, too, am thankful for the forum, coming up on 10 years since diagnosis, with you and many others on my support team since day one. I need to touch base here more often,...
Welcome to the group. Sorry you have a reason to join, but it was a good move, for sure.Your case sounds pretty typical, which is a good thing, as it could be worse. But in the early stages it does...
Welcome, Ilias,
I don't know what I can add except that your situation sounds so familiar, yet different, as is often the case with WG/GPA. I started with a big ear infection at age 58, which I...
Thanks, Alysia, for letting everyone know about Daryl's passing and how much he meant to you and to Phil. Those of us who knew him on Facebook knew how, with just a few words, he could convey his...
Thanks so much, Alysia. I love you, too! It would be so amazing if we could meet someday. I feel like I know you more than online, too. I remember when you first joined the Forum, not long after I...
Hi, Gary, I just wanted to say welcome to the forum, haven't been on here much lately and just noticed your posts and the replies. I started out in 2008 with a severe ear infection in both ears, and...
Thank you, Masha! It's tomorrow, but early is always good! I have been a little spotty on here since ditching Tapatalk and getting back on the computer. Just put a shortcut on my desktop, which...
Welcome, Mandy. You致e come to the right place. To answer drz痴 question, I知 one who did know about WG/GPA before my diagnoses. But I didn稚 quite think I had it. Like you, a big bilateral ear...
I have heard of people having more than one autoimmune condition, even as many as 3 or 4. I guess that would mean you could have two forms of vasculitis. I'm not as up on the technical data as some,...
Welcome, Dave! So many things sound familiar about your case and others don't, or I didn't have all the same symptoms like rash on the legs, though I knew about them from this forum. After 9 years I...
I agree! My doc in 2011, year of dx, was crappy in more ways than one, a pulmonologist with little WG experience, and I don't know that anyone else in town would have been better. Though he was a...
Hi, drz,
Yep, I知 pretty darn disorganized and have signed up for so many things it would be impossible to remember all the passwords. I have them written down on multiple pieces of paper but then...
I have tried a few times since March or April to get logged in here. Meanwhile I致e been logging in on Tapatalk without knowing my password, since I don稚 remember it, and now I have a digitally...
Wow, Pete gilders, it would be so cool if you took a road trip in the US, and maybe into Canada, too. I guess it will be awhile, with Covid 19. But when you do, if you came through my area of the...
Wow, what a thread! And so good to see you here again, Geoff! Thanks, drz, for starting this and keeping it going. It sounds like you've gotten the upper hand over the wicked granny, and I hope she...
True, what drz said about searching the archives. I have always suggested that but forgot this time. You might end up wading through a lot of posts, but you will learn a lot in addition to the...
Welcome to everyone! We wish you hadn't contracted this disease but if you did, or think you may have, or are here in support of a friend or family member, you have come to the right place. Introduce...
Right on, Masha! I was lucky enough to have the forum even before diagnosis. But like you, I didn't speak up right away. I also encourage the newbies to join in. This is a welcoming and supportive...
Thanks for remembering about Bathorse, Gilders. We will always remember Phil and Barbara with love.
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So glad to hear about your good kidney function, Pete. It seems a lot of Weggies get anemic from time to time. I'm one of them, though I know there can be various reasons. Good to hear of the veg...
Alysia, I put a Like because I'm glad to hear from you and that you got your RTX and it's starting to help. The same thing is happening in our country except I don't think any schools have opened. I...
[QUOTE=Pete;116362]A glucocorticoid seems to be effective at mitigating the effects of coronavirus. I wonder if prednisone would be as effective?
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me2.... Hi, Kirk, glad you are coping well, with your sense of humor intact!
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Thanks, drz. I don't remember seeing info about this before, so have checked it out and gone ahead and registered. I have perhaps been less socially isolated than you, but was already something of a...