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Type: Posts; User: NatriceRomeo

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  1. Replies
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    Re: Your Thoughts on Dying.

    DrZ,
    Thank you for reviving this topic. I looked through all the posts, and it is difficult to comprehend the characters and people whom seem so alive... and whom arenít with us anymore. It makes...
  2. Re: Coping with stress on current pandemic

    I recently watched a podcast with Dr Z and Dr Oriff, director of vaccine education at Philadelphia childrenís hospital. He said in order for herd immunity to happen with a vaccine over 2/3 of the...
  3. Re: Coping with stress on current pandemic

    Hi everyone,
    I am still working as a paramedic in St Louis. I was really worried when the pandemic came here. The fire dept I work for insists we wear N100 on every call and we wear simple masks...
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    Re: pberggren memorial thread

    Iím so so sad to read this. My heart is heavy for you, Alyssa and for Philís mommy. I hope she finds peace. You are all in my heart and in my thoughts.
    Natrice


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    Re: New to Wegener's, new to the forum

    Oh my goodness! Susan, you have been put through the ringer! I say quite often Wegeners is not for the faint of heart, hearing your story reaffirms my belief. I know you are new to this diagnosis but...
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    Re: Happy Birthdays Thread

    Happy belated birthday ladies! Hope you had a great day!
    Natty


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    Re: Coronavirus and GPA

    Happy birthday!
    What country do you live in?


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    Re: Coronavirus and GPA

    Hi everyone,
    I work in healthcare. Iím a paramedic for a county in St Louis Missouri. I also am on Rituxin & this virus of course has been on the forefront of my mind. Iím due in April for a Rituxin...
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    Re: Transplant

    Hi gliders,
    So glad your kidney function has stabilised! It is a relief! Hereís hoping you continue to grow stronger every day!
    Nattt


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    Re: Recent Diagnosis

    Sajo,
    Hope you are starting to feel better. Hopefully you have better luck on cellcept than I did! I find tapering on prednisone just plain sucks!
    Natty


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    Re: Not a diagnosis I expected

    Hi Jim,
    Sorry you got this diagnosis but I totally understand that there is also relief knowing what is wrong. I feel like GPA is a terrible disease but when itís under some sort of control you can...
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    Re: New Here - Dx question

    Hi Weglee,
    Your father has vasculitis? Thatís interesting! There has been several debates about vasculitis possibly being genetic.
    First off, when I was first diagnosed I was placed on methotrexate...
  13. Thread: Here I go

    by NatriceRomeo
    Replies
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    Re: Here I go

    Hi annemarie,

    When I was first diagnosed I was cANCA positive. For the past 4-5 years-I have been pANCA positive. My Dr considers it still GPA.
    I hope you find a diagnosis soon & start feeling...
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    Re: My story...

    Hi Smashing,
    I concur with everyone else. It sounds like you are treating your symptoms & though that may sounds great, there is still damage being done to your body which can be permanent.
    Good...
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    Re: My journey so far

    Hi Karen,
    Welcome to the forum. I am sorry and disappointed in your experience with Drs. I have had my share of ignorance from them myself. At least now you have a diagnosis and can work on feeling...
  16. Re: Mal Brown. Diagnosed 10 years ago but new to the forum

    Hi Mel,
    I was diagnosed in Sydney but have since moved abroad. I am sorry that you have felt alone in this journey but you are not! I have said before this disease is not for the faint of heart. I...
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    Re: New, in Palm Springs

    Hi Jan,
    I do hope you are feeling better now. I know it can be overwhelming but us people diagnosed with GPA are hard core and never give up. You got this! We all are pulling for you!
    Natty

    ...
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    Re: Split decision on diagnosis

    Aaron,
    I concur with everyone here encouraging you to seek a second opinion from someone whom has experience with GPA. I would also encourage you to see an ENT with experience in this disease. I...
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    Re: In process of being diagnosed

    Hi Lea,
    Welcome to the forum! I too had been diagnosed as ďlimited GPAĒ, this was 23 years ago. The thought being that no major organs are affected. I even had one Dr say that all the tests that...
  20. Re: Journey to being diagnosed, treated, and already first flare up

    Onirin,
    It certainly sounds like you have had a tough go of it. It is frustrating when a simple test is negative and they have to go for the most invasive test for an answer. I, myself am fairly...
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    Re: Happy Birthdays Thread

    Happy Birthday Andrew!


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    Re: Transplant

    Gliders,
    I can empathise with you. It is so frustrating when things do not go your way. Do the Drs think your kidney function will increase or is a kidney function in the 30ís going to be your...
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    Re: Glad to be diagnosed

    Oops sorry! Should have read the whole thread. [emoji849]


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    Re: Glad to be diagnosed

    Hi Geoff,

    Iím glad you got a diagnosis. I tried Mycophenylate but it never worked for me. When I was first diagnosed I was placed on Methotrexate and prednisone (of course[emoji3525]). After...
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    Re: Happy Birthdays Thread

    Happy belated birthday to the Peteís!


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