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Type: Posts; User: Carly Hedge

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  1. Replies
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    I don't know. We are using it to manage the...

    I don't know. We are using it to manage the condition right now for me but I believe my Dr. would use it to treat a flare up for me since its the only thing working for me. Everything else that we...
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    Glad to hear. I have also noticed a change in my...

    Glad to hear. I have also noticed a change in my vision recently. I have an appt with the eye Dr. in Aug. soonest they can get me in. At least its before our travels in Sept.
    I am far sighted and...
  3. 14.00-Immune-Adult...

    14.00-Immune-Adult

    D.-(14.03)- 2.a-ii
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    Thank you guys. I also talked to my Rheuma and...

    Thank you guys. I also talked to my Rheuma and she suggested as long as I don't have to talk on the phone alot-can't breathe, do alot of physical activity, and take care of myself like disinfecting...
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    Wow- thanks guys. That helps. My rheuma just has...

    Wow- thanks guys. That helps. My rheuma just has the basic form for everytime I see her so I know that won't do but you guys gave the some idea of what to say and I will also have to discuss the...
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    Work- Related question..

    My co-worker has put in her notice so work is looking at me to take over as much as I can but I know that I can't. They are aware of my condition but I need to write a letter for my doctor to sign so...
  7. Thread: Alochol

    by Carly Hedge
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    My Rheuma when I was on the that mix told me no...

    My Rheuma when I was on the that mix told me no alcohol but I also have liver issues. She has allowed me 1 and ONLY 1 glass of wine or beer OCCASIONALLY.. NO hard stuff!! It's sux cause I am a Rum...
  8. U guys are too funny. Well, you didn't have to...

    U guys are too funny. Well, you didn't have to really drag me to change my mind about Dr. Seo. I just don't want Dr. feelings hurt. I love my Rheuma. She is great so I am keeping her and just...
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    Hi Luce. Thanks for the avatar love!...

    Hi Luce.
    Thanks for the avatar love! Understandable about the whole name change-probably didn't think about but you probably had ALOT on your plate when you purchased it. I talked to my Rheuma on...
  10. Thanks! Jack. :)

    Thanks! Jack. :)
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    Hi Jen.. I have to take a daily dose of Pred....

    Hi Jen..

    I have to take a daily dose of Pred. I was down to 5 mg a day but because I am in the middle of my 2nd round of rixtuxan, my Dr. bumped me back up to 20 mg a day till we are done with...
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    Hear! Hear! :)

    Hear! Hear! :)
  13. nag me all you want- I don't mind. LOL. :) I...

    nag me all you want- I don't mind. LOL. :) I appreciate ur advice or anyone's here. :) I advise DR. Seo medical assist so probably after this weekend, I should hear from his nurse to see him. ...
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    Well I like halloween and I like black cats.....

    Well I like halloween and I like black cats.. Couldn't find the other one I like using so I picked that one. I was always the kid that stood out. ;P
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    Lmao!! Too funny. Thanks! XD

    Lmao!! Too funny. Thanks! XD
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    His story was one of the first ones, I read on...

    His story was one of the first ones, I read on the Vasculitis Foundations page. Glad that he is doing ok. Glad that it was on the news. :)
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    Ok guys, well this is the site that my hub and I...

    Ok guys, well this is the site that my hub and I are going to use when we go forth with mine and I thought I would share if you guys wanted to get one for the future.

    Medical ID Jewelry and...
  18. I am trying to be. I work part-time and get no...

    I am trying to be. I work part-time and get no benefits so we didn't have a 2nd income from July 31 st till the 2nd week of Jan of 2010 when I was released back into the public. The medical bills...
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    Yep, I had to get the *killed* versions of the...

    Yep, I had to get the *killed* versions of the swine flu, regular flu and then the long named one for pneumonia. But other then that nothing else that I know of.
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    my hubby and I have been delaying it but we have...

    my hubby and I have been delaying it but we have to get to it ourselves. :)
  21. I called and my case worker stated that I was...

    I called and my case worker stated that I was denied because I made over the amount last year once before I was sick. He said even a dollar over can deny ya. Asked if I was still working told I had...
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    How many of you??

    Have Medical Id bracelets or necklaces so if something happens that the EMTs or other emergency personnel are aware of your condition.
    I have mentioned it to my Rheuma and she stated that its a...
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    I was thinking about doing that also. I know my...

    I was thinking about doing that also. I know my father will be donating his body to science even though he doesn't have this condition. It's a nice alternative so we can help people currently and in...
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    Wegener's and work.

    I work part time at the local city's park and recreational office at the front desk. So I deal with people daily. I feel guilty calling in when I am sick like today. My tummy is not being friendly...
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    When I spoke to my Rheuma when I was diagnosed, I...

    When I spoke to my Rheuma when I was diagnosed, I inquired about the whole donor thing because I strongly believe in it and have organ donor on my driver's license plus have donated blood in the...
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