Search:

Type: Posts; User: jola57

Page 1 of 20 1 2 3 4

Search: Search took 0.05 seconds.

  1. Replies
    961
    Views
    95,154

    Phil watched over us in life, giving advice from...

    Phil watched over us in life, giving advice from net potty to cyclo, I am sure he will be doing the same from Heaven.
    get well Marta, sending a bowl of polish chicken soup.
  2. Replies
    961
    Views
    95,154

    Words can't describe how I feel. Phil was part...

    Words can't describe how I feel. Phil was part of our original startup group and as one of the youngest at the time, I never thought his time would be so short. Alysia, you have brought so much...
  3. Thank you for that great info! I will print and...

    Thank you for that great info! I will print and give to everyone that keeps asking for the past 7 years, what is it that I have.
  4. Replies
    82
    Views
    5,350

    This time it is definitely a date Geoff :) Phil...

    This time it is definitely a date Geoff :) Phil and Andrew, if you firm up the day, I can fly to Calgary for couple of days :)
  5. Replies
    82
    Views
    5,350

    It would be great to meet in UK, I may be there...

    It would be great to meet in UK, I may be there June 16 to 21 and August 19 to 29.
    Geoff, at least us two should meet. Congrats on retirement :)
  6. Replies
    17
    Views
    1,422

    Nikki, Anne and Debra are so right, if he is not...

    Nikki, Anne and Debra are so right, if he is not a wegs specialist, don't listen. I have two different "rashes", wegs one and "old age" one. Wegs is usually on my lower legs, and looks...
  7. Replies
    24
    Views
    1,736

    Sigh!!! Yup, that's me pre weg.

    Sigh!!! Yup, that's me pre weg.
  8. Replies
    13
    Views
    1,092

    Hi Jen, i too don't know much about rtx but know...

    Hi Jen,
    i too don't know much about rtx but know that it can affect people differently. Please call the drug company's hotline about side effects. A big hug and keep us updated when you can.
  9. Replies
    9
    Views
    923

    Good luck with the 2 docs, get better soon

    Good luck with the 2 docs, get better soon
  10. Replies
    8
    Views
    515

    Happy camper, I'm there with you. Stay positive....

    Happy camper, I'm there with you. Stay positive. Hugs
  11. My weggs is in my nerves and neuropathy is now...

    My weggs is in my nerves and neuropathy is now part of the new me. I have learned to live thru dropped foot, nerve pain, no feeling, pins and needles, horrible burning sensation, feeling of elephant...
  12. Replies
    11
    Views
    946

    Hi all, I have not been on for a while but have...

    Hi all, I have not been on for a while but have been peeking. Swimming is what lets me loose weight and stay flexible, on a good week I will go 3 times for an hour. Hot tub is close if I need it. I...
  13. Thread: ANCA range?

    by jola57
    Replies
    25
    Views
    2,897

    My cAnca is always above 200 ( they don't report...

    My cAnca is always above 200 ( they don't report the actual level beyond this number) The lowest since I was diagnosed almost 7 years ago, was 56 and that was after 1.5 yrs on cyclophosphamide.
  14. Replies
    32
    Views
    3,333

    Good news Carrie, but for future info to all...

    Good news Carrie, but for future info to all about mold. When our company rental tenants experience mild to moderate mold on ceilings or walls the contractors we hire use Microban(c) to spray the...
  15. Replies
    5
    Views
    626

    Having an animal that gives unconditional love...

    Having an animal that gives unconditional love (well the occasional treats work wonders) is a great therapy, one that is being recognized in all types of well being and therapy medicinals. I am glad...
  16. Replies
    22
    Views
    1,713

    I was diagnosed in 2007 and here I am still...

    I was diagnosed in 2007 and here I am still kicking back, so do not despair Mary, you will see your grandkids and see your son graduate college. Keep positive :)
  17. Replies
    17
    Views
    1,338

    I have worked thru my wegs but only because i own...

    I have worked thru my wegs but only because i own my business and have other staff to carry on. I found that if I stayed home until 11 am then went to work, I could stay until 6 or even 9pm if I had...
  18. Replies
    66
    Views
    5,208

    Sorry to hijack the post but please read on: Our...

    Sorry to hijack the post but please read on: Our own lightwarrior has passed away, this is her daughter's post on Facebook

    "This is Valerie, Christi's daughter... As many of you may already know,...
  19. Thread: Lightwarrior

    by jola57
    Replies
    57
    Views
    3,932

    I just read same post. Rest in peace Christi and...

    I just read same post. Rest in peace Christi and may the light shine for you allways lightwarrior
  20. Thread: Hot Flashes?

    by jola57
    Replies
    18
    Views
    1,638

    KathyB, same here, diagnosed with hashimotos -...

    KathyB, same here, diagnosed with hashimotos - hyporthyroidism after first baby 27 years ago, wegs in 2006, started getting hot flashes when I was on cyclo and pred. Now all of a sudden I am so hyper...
  21. Replies
    17
    Views
    1,238

    Go for both, relax in Hawaii and have a smashing...

    Go for both, relax in Hawaii and have a smashing time in Graceland. 2 years is perfect time to plan both the trip and plan of attack if you get a flare. Never say you can't, be prepared for the...
  22. Thread: Super video

    by jola57
    Replies
    8
    Views
    1,659

    Super video

    A friend sent me this video, it made me cry and laugh.
    Http://m.youtube.com/watch?v=BaQdwTsVtCY I hope the link works, it's worth it :)
  23. Replies
    9
    Views
    901

    Did you have a checkup with a neurologist?

    Did you have a checkup with a neurologist?
  24. Replies
    74
    Views
    8,730

    Nice, but just take it slow don't rush, many did...

    Nice, but just take it slow don't rush, many did and had to go back up.
  25. Thread: Night Sweats

    by jola57
    Replies
    12
    Views
    1,221

    I had the night sweats only in the beginning, so...

    I had the night sweats only in the beginning, so yes, like everyone said, let your doc know. The rash sounds a lot like lupus. Let us know how you are doing.
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4