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  1. Thread: Joint Pain

    by mich911
    Replies
    5
    Views
    900

    Re: Joint Pain

    Hi Pete,

    I tapered really slow and was feeling pretty good in October & November. Started getting gradual joint pain and saw my doctor on Dec 13 and felt pretty good. My joint pain has gotten...
  2. Thread: Joint Pain

    by mich911
    Replies
    5
    Views
    900

    Joint Pain

    Hi everyone,

    Was diagnosed with WG June 2016. I was on high doses of Prednisone and had about 4 rituxan treatments. My last treatment was Oct. 2, 2017. The treatments have helped but since...
  3. Replies
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    Sticky: Hi, I was diagnosed with Wegs in April 2016 since...

    Hi, I was diagnosed with Wegs in April 2016 since then I've been on predisone & 4 rounds, once a week of Rituxan & one maintenance treatment this past April. I'm getting another maintenance...
  4. Replies
    1
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    379

    Prednisone & Acne

    Hi Everyone,

    So its been a long summer and I've had four rituxan treatments and have been tapering down on Prednisone from 40mg to currently 5mg. I'm feeling ok not 100%. Still not in remission...
  5. Replies
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    Hi, Hope your treatment went well yesterday. I...

    Hi,
    Hope your treatment went well yesterday. I have had two rtx treatments and my third is Monday. So far I've had no problems and have tolerated the treatments pretty good. Just very tired...
  6. Replies
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    Hi Blu4runner, Hope your treatment went well...

    Hi Blu4runner,
    Hope your treatment went well yesterday. I was at UPENN yesterday also for my follow up appt with Dr. Sreih. If I knew I would have stop by to say hello:)

    Michelle
  7. Replies
    4
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    612

    Rituxan & tireness

    Hi,

    I've had two doses of Rituxan, a week apart from each other and I'll be getting my third on Monday. I'm also tapering down on the predisone so now I'm on 10mg. Does Rituxan make you feel...
  8. Replies
    9
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    644

    Hi Tom, Thanks for the WEG BVAS eval!! That...

    Hi Tom,
    Thanks for the WEG BVAS eval!! That will definitely be helpful. My Wegs involvement is in my nasal passages and has not advanced to my lungs or Kidneys but it probably would eventually if...
  9. Replies
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    644

    [QUOTE=blu4runner;107727]I have to start my...

    [QUOTE=blu4runner;107727]I have to start my Rituximab treatments again due to a flare and I will be at UPenn this Friday for the first infusion. I'm on 60mg of prednisone and we will discuss the...
  10. Replies
    9
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    644

    Hi, Glad to hear you are not having any issues...

    Hi,
    Glad to hear you are not having any issues with the treatments. Makes me feel so more at ease for Monday. My appointment is at 8:00am so I'm expecting to be there all day. You are so right...
  11. Replies
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    644

    Hi Pete, Yes I did hear about tapering slowly. ...

    Hi Pete,
    Yes I did hear about tapering slowly. The doctor actually told me to taper every two weeks 10mg but I'll be seeing him again on Aug. 5 for follow up and I'll ask him about it. I couldn't...
  12. Replies
    9
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    644

    First Rituxan treatment

    Hello everyone!!

    I finally got approval for 4 rituxan treatments and the first one starts on this Monday at UPENN. Hopefully everything will go well & not have too many side effects. Being on...
  13. Replies
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    8,431

    Sticky: Specialist name: /Dr. Antoine Sreih Location...

    Specialist name: /Dr. Antoine Sreih
    Location (Country/State/City): University of PENN
    Area of specialisation: Rheumatologist, Vasculitis
  14. Thread: Treatment plan

    by mich911
    Replies
    10
    Views
    771

    Hi Alysia, Yes my WG doctor did prescribe the...

    Hi Alysia,

    Yes my WG doctor did prescribe the pneumonia shot and he said get it immediately so I did get it yesterday. My RTX treatments probably won't start until July. UPenn has to get...
  15. Thread: Treatment plan

    by mich911
    Replies
    10
    Views
    771

    Thank you everyone!! It makes me feel so much...

    Thank you everyone!! It makes me feel so much better discussing this with people who are familiar with the disease and have gone through the treatment. I'm so happy to have found this support...
  16. Thread: Treatment plan

    by mich911
    Replies
    10
    Views
    771

    Treatment plan

    Hi everyone,

    I finally got to see my specialist Dr. Sreih at UPENN yesterday. He is the most professional, compassionate doctor I've ever met. He spend about 1 1/2 hrs with me & my husband going...
  17. Replies
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    You are so right!! I need to get effective...

    You are so right!! I need to get effective treatment to stop the progression of this disease. It's the only way. Also, good advice about calling in to see if there are any cancellations. The...
  18. Replies
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    859

    Thanks for the advice! I'm so nervous about the...

    Thanks for the advice! I'm so nervous about the treatment plan. I know these medicines are hard on the body and it scares me that I will be really sick on them. But I know I need to get treatment...
  19. Replies
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    Hi Anne, I really praying that they can diagnose...

    Hi Anne, I really praying that they can diagnose me without the biospy. June 17 seems so far away and I'm concerned with this recent symptom of numbness in my right foot/ankle. Been numb for a...
  20. Replies
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    859

    Hi blu4runner, Good to hear that Dr. Sreih...

    Hi blu4runner,

    Good to hear that Dr. Sreih is a great doctor and that he works closely with Dr. Merkel because he the ultimate expert in WG. I need all the help I can get to feel better.
  21. Replies
    15
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    859

    Thanks guys for the advice!! I was also...

    Thanks guys for the advice!! I was also wondering why they did the nasal biospy. I did actually question my local Rheumatologist and he insisted on the biospy. As of current I'm not having any lung...
  22. Replies
    15
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    859

    So frustruated- negative biospy

    Well, just received news that my nasal biospy was benign. Non specific to Wegeners. The last piece of the puzzle doesn't fit. I have a positive c-anca, sed rate is sky high, rheumatory fator and I...
  23. Replies
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    1,338

    Hi DRZ, It was really painful and there were...

    Hi DRZ,

    It was really painful and there were cramps that came in intervals. It ran up my leg. I finally felt better after taking my two advils & then two tylenol an hour later. However my foot...
  24. Replies
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    Thanks so much Pete for the information. I'm...

    Thanks so much Pete for the information. I'm going to check it out:)
  25. Replies
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    1,338

    Hi everyone, Maybe someone can give me some...

    Hi everyone,

    Maybe someone can give me some insight. Today I have a numbness in my right foot on the side where my ankle is and the numbness is going a little up my leg. Has anyone experienced...
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