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Hey-
If you can get to the John Hopkins Foundation in Cleveland, Ohio that might be better than flying to California. You will find in Cleveland they "KNOW" the disease and have top notch doctors. ...

HI- I love this forum. It alone has eased my anxiety. Thank you all> My fiancé got me a journal already and I keep track of my intake and outputs for dialysis as well as the meds they might give...

Good morning Pete,
I was hoping I got my post out there as Im not real skilled with a computer...... I as about 6 hours from the Cleveland Clinic but my Rheumatologist consults with them about my...

So, what a journey since Thanksgiving... I don't believe there was a symptom that I DID NOT have. Thank God for the Pulmonologist, Dr. Downing here in Indiana! He looked at me and my symptoms,...