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Type: Posts; User: meganjean26

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  1. Re: 7 years ago today I became a member of this elite club

    Vaccines did NOT cause our wegeners. Viruses are know to potentially set off the cascade of events to onset and relapse of autoimmune disease. I️ am certain this is the case for the onset of my...
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    Sticky: I had no idea you can get wegeners in the brain. ...

    I had no idea you can get wegeners in the brain. I'm so sorry you are going though all of that.


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    Hi Jennifer! Our wegeners stories seem very...

    Hi Jennifer! Our wegeners stories seem very familiar and I live in your sister city Raleigh. I too am now on cellcept only for the last 2 months and have been doing Rituxan after relapsing 2x this...
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    Sent from my iPhone using Tapatalk

    Sent from my iPhone using Tapatalk
  5. I with you. I get mad when people are like things...

    I with you. I get mad when people are like things happen for a reason and this will make you stronger. There has been NO good reason or outcome from my wegeners. And it hasn't made me stronger. I'm...
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    I don't think disability is the best solution....

    I don't think disability is the best solution. Wegeners is generally treatable. What drugs are you on? Why are you not improving. Are they missing something? You may need a new doctor. Maybe this leg...
  7. Thread: Cellcept

    by meganjean26
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    Cellcept

    Has anyone taken this drug to achieve remission? I have relapsed 3 times on methotrexate so my rheumatologist is trying this instead. I will still do Rituxan every 6 mo.


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    Glad it went well. I had my surgery 11 years ago...

    Glad it went well. I had my surgery 11 years ago sounds like the same rib cartilage. I was very pleased with the result. I have relapsed 2 times since then and I think it is falling back in. How long...
  9. Thread: Hi all!

    by meganjean26
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    Hi all!

    I just wanted to introduce myself I have been going through my 3rd relapse and a coworker suggested I find a support group. I guess they are sick of hearing me talk about it. Lol. I have have...
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