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Type: Posts; User: NatriceRomeo

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  1. Replies
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    Re: Transplant

    Gliders,
    I can empathise with you. It is so frustrating when things do not go your way. Do the Drs think your kidney function will increase or is a kidney function in the 30ís going to be your...
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    Re: Glad to be diagnosed

    Oops sorry! Should have read the whole thread. [emoji849]


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    Re: Glad to be diagnosed

    Hi Geoff,

    Iím glad you got a diagnosis. I tried Mycophenylate but it never worked for me. When I was first diagnosed I was placed on Methotrexate and prednisone (of course[emoji3525]). After...
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    Re: Happy Birthdays Thread

    Happy belated birthday to the Peteís!


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    Re: Newly diagnosed and Divorcing

    Iím so sorry. It sure sounds like you have a lot of stress in your life right now. I know from my personal experience, stress is a trigger. That being said, until things have been decided, it doesnít...
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    Re: pberggren memorial thread

    Oh Alyssa,
    I wish there were words to take this pain away. I think of you both often. Iím sending a virtual hug.
    Natty


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  7. Replies
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    Re: Transplant

    Gliders,
    I will take the news as good about the antibodies. I am sorry about the kidney function. How are you feeling? Do you feel better, worse or same since the transplant? How is your Dad...
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    Re: Happy Birthdays Thread

    Happy birthday Anne! Hope you had a great day!
    Natty


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  9. Re: Wegeners/GPA for 41 years - Transplant for 25 - Having a Relapse

    Hi Kim,

    Welcome! Have you had the rituxin infusion? How are you feeling? Weíre there any problems? I find myself that I feel pretty good for a few days (that would be the solumedrol) my body sure...
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    Re: My GPA story

    Hi Rosie,
    Iím sad that you were diagnosed & sick but so very happy you found this forum. I have found the wonderful people here open, honest & full of information. I have had this disease for a long...
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    Re: Lena's story

    Welcome Lena,
    I know I feel quite blessed to find a group of people whom understand. I have to tell you I have had this disease half my life & it never occurred to me to look for a support group! I...
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    Re: Transplant

    Gliders,
    Congratulations on the graduation of your son! Iím so pleased there is finally some good news for you. I still think of you every day!


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    Re: Transplant

    Gliders,
    So relieved things are a little better and you are able to walk further. I am also very relieved that you dad is doing well! Hopefully things will continue to improve.


    Sent from my...
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    Re: Transplant

    Iím sorry gliders! I was hoping and praying that you would be recovered by now & dancing on tables! Iím still thinking of you


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    Re: Happy Birthdays Thread

    Thank you everyone! You are all so wonderful!
    Natty


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  16. Replies
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    Re: Transplant

    So happy that you have good news finally! Still thinking of you everyday & follow your recovery.
    Natty


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    Re: Hi everyone

    Sorento, what a terrible story! Please get a second opinion. I do know WG can affect the heart from what my rheumatologist has said it causes congestive heart failure. I think if the Drs could...
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    Re: Just diagnosed from Queensland Australia

    I was diagnosed in Australia when I was a teenager. It took about 3-4 months. It initially manifested with a swollen eye lid. I went to a GP & they told me o should not be so concerned about my...
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    Re: Hello from another new member

    Hi Tricia,
    Iím sorry you are in the club but happy you found this place. The people are so awesome & everyone here has different symptoms of WG but a life time of experience.
    I do hope you start...
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    Re: Transplant

    Oh no! Iím so sad to hear this. Iím hoping for positive news to come. My thoughts are with you. Please keep us updated. We are all cheering for you!


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    Re: Strict Dieting

    Donít be too hard on yourself. Itís ok to fall off the wagon multiple times. Youíre doing great! Youíre trying & thatís what counts. We are all cheering for you! You got this!


    Sent from my...
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    Re: Transplant

    So glad things are going better. It is a relief you are doing better. Iím still thinking of you!
    Natty


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    Re: Transplant

    Oh no! Please get better soon! Thinking of you!


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  24. Replies
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    Re: Transplant

    Iím thinking & praying for you & your dad. I hope they give you plenty of pain meds! You have been on my mind all day.


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    Re: Transplant

    I am thinking of you!!


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