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  1. Thread: Need help

    by Lily0303
    Replies
    6
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    12,030

    Re: Need help

    UPDATE: had another fight yesterday, talked with my ex. Were in agreement were going to put money together and get a place. Is going to take some time but have something to look forward to at least
  2. Thread: Need help

    by Lily0303
    Replies
    6
    Views
    12,030

    Re: Need help

    I do have family near by. I also have been talking with an ex recently and hes been saying the same thing (only reason we broke up was I thought it would be better for him). I have been talking with...
  3. Thread: Need help

    by Lily0303
    Replies
    6
    Views
    12,030

    Need help

    I'm at a loss. My boyfriend, who was great in the beginning, helped after I got infusions (let me rest, got water for me etc.) Is now completely different. I work what I can an I try to push further....
  4. Thread: Lots of pain

    by Lily0303
    Replies
    10
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    2,460

    I reached out to my doctor she wants blood work...

    I reached out to my doctor she wants blood work to see what's wrong. But she is giving me stronger pain meds in the mean time
  5. Thread: Lots of pain

    by Lily0303
    Replies
    10
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    2,460

    I have and it helps for a little while but then I...

    I have and it helps for a little while but then I have to go outside to the cold and it comes back
  6. Thread: Lots of pain

    by Lily0303
    Replies
    10
    Views
    2,460

    I have an appointment this Friday to see her, and...

    I have an appointment this Friday to see her, and left a message with her nurse last night. It has been increasing for days,lay night it just got unbearable.
  7. Thread: Lots of pain

    by Lily0303
    Replies
    10
    Views
    2,460

    Lots of pain

    I don't like to complain about pain, until it's really bad. Been having full body paineeds on a scale of 9/10. Anyone have a suggestion on what to do besides painot killers? I have tram adolescent...
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    Sounds like mine. What I really want to know is,...

    Sounds like mine. What I really want to know is, since it's been 7 years...well she ever come to understand I won't ever be normal? I used to be able to push through anything and keep up with the...
  9. Replies
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    Ever since I moved out and got a small family of...

    Ever since I moved out and got a small family of my own (adopted Jason's daughter as my own) she became bearable. It's when matters of money come up that she is her old self. We have to get a new car...
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    I work for a company called favor over in Austin,...

    I work for a company called favor over in Austin, I love working for them because I work at my own pace, set my own hours etc. The best part is I am my own boss. Until the accident all the money I...
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    Needing to vent

    I have a question for all of you: does anyone else have a problem with their family understanding? I was in a car accident a week ago (no major injuries thank goodness even went to ER to be sure)....
  12. Thread: Biopsy update

    by Lily0303
    Replies
    2
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    971

    Biopsy update

    The biopsy i had a couple weeks ago went well. Have a couple vruises from where they tried and got the IV in. The results came back good. It is just steriod induced diabetes that is causing the...
  13. Thread: First biopsy

    by Lily0303
    Replies
    5
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    1,347

    I could imagine it world get a bit boring. But...

    I could imagine it world get a bit boring. But ill pike books by me so i can read for a while:thumbsup:
  14. Thread: First biopsy

    by Lily0303
    Replies
    5
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    1,347

    That makes me feel a bit better. I always get...

    That makes me feel a bit better. I always get nervous, even if it's something i know will be fine.
  15. Thread: First biopsy

    by Lily0303
    Replies
    5
    Views
    1,347

    First biopsy

    So i went to see the nephrologist today and they want to do a biopsy to make sure the weg isnt messing with my kidneys... i also switched off imuran to cellcept. I have been having a bit of acid...
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    I agree with MikeG. When i was first diagnosed it...

    I agree with MikeG. When i was first diagnosed it took doctors MONTHS and a month and a half long trip to intensive care unit to figure it out. You have to keep pushing and pushing not matter what!
  17. Has anyone else had a bad reaction to rituxan?

    Went in for my 3rd weekly infusion tuesday, the second had my face a little swollen. Went in for the 3rd and started throwing up had problems breathing. Ended up spending the night in the hospital...
  18. Thread: Rituxan

    by Lily0303
    Replies
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    7,424

    When i am having a flare up usually it starts...

    When i am having a flare up usually it starts with rash on my legs that looks kind of like chicken pox, then comes the joint pain and problems breathing. Best way it to have them do a full panel of...
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    Ok, good to know. Been feeling like crap because...

    Ok, good to know. Been feeling like crap because memory is only getting worse. People have been getting mad because i forgot what they told me etc. Thank you :)
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    Memory loss/ forgetfulness

    Does any one else have problems remembering things? I have noticed recently I've been forgetting stuff I did half an hour before. I'm not sure if this is a common problem or if I'm slightly losing my...
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    Thanks again guys. I try and be a gentle as I can...

    Thanks again guys. I try and be a gentle as I can be but sometimes I want to be my old self and push it. Get lectured for it but not as much add I used to, taking life slower. If I'm going to be...
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    Thank you everyone. We have both been doing...

    Thank you everyone. We have both been doing research and hopefully since I've been on a majority of the medications before it hopefully will be easier on my system. I try to not let him see how...
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    Scared of next month

    I go to the rheumatologist next month dlto discuss my long term treatments. Jason, my fiancé, is going with me and is more than supportive. I just can't help but think the worst. That there isn't...
  24. Thread: Rituxan

    by Lily0303
    Replies
    24
    Views
    7,424

    Thanks everyone :) am feeling a bit better about...

    Thanks everyone :) am feeling a bit better about all of it. I did have one more question, does anyone know if it's possible to get pregnant after being on all these? Have been on cytoxan, imuran, and...
  25. Thread: Rituxan

    by Lily0303
    Replies
    24
    Views
    7,424

    Yeah I was on the cytoxan when I was first...

    Yeah I was on the cytoxan when I was first diagnosed but they had to take me off it too. Was wreaking too much havoc, you could say :biggrin1: the retuxin I had 5 infusions but showing the same signs...
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