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    Starting CTX and rant!!

    Hello all

    Apolgies for laying dormant for so long, have had so much to deal with i went back into denial!

    Since ive last been on here, ive had a bit of a nightmare trying to get this thing...
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    Hi All Thanks again for all your lovely...

    Hi All

    Thanks again for all your lovely words, ive had a very positive couple of weeks :-) i love the spoons theory and have been using it, i have sundays as spoon polishing days (i do nothing at...
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    Thanks paul, good advice, and i love the spoon...

    Thanks paul, good advice, and i love the spoon theory, im going to use that one.

    Learning to take life slower is going to be the hardest thing, but i can see it also having its advantages!!

    I...
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    Well i didn't kill the hairdresser!! its cheered...

    Well i didn't kill the hairdresser!! its cheered me up no end, my hair was so long and had got really thin from the pred, now it looks fab and very short, had about a foot cut off, but at least...
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    And i spelt denial wrong!!

    And i spelt denial wrong!!
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    Ok So im out of denail!!

    Hi All,

    I think ive finally accepted that i have this horrible thing, i've had a really crap week, had a flare up in my ears and generally feel really crap.

    The steriods appear to have stopped...
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    oh and i have got really really shakey, hands...

    oh and i have got really really shakey, hands mainly, do you think that might be the MTX or something else?
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    Hi I live in gloucestershire, south west england,...

    Hi I live in gloucestershire, south west england, cambridge isn't too far away from me.

    I have also got tubes in my ears, but this has not helped my hearing :-(

    I have seen my consultant today...
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    Hi there Jimix, there are a few of us J Smiths!!...

    Hi there Jimix, there are a few of us J Smiths!! Thanks for sharing the link, i will spend some time looking at it.


    With regards to my steriods, im just concerned that my symptoms have returned,...
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    Hi I agree it sounds a bit extreme, i need to...

    Hi I agree it sounds a bit extreme, i need to look into it a little more, he said they dont usually offer it but he will make an acception, i have been really messed around, and if id of been...
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    Hi very positive at the ENT today, first time ive...

    Hi very positive at the ENT today, first time ive seen him since i got the results and he was very apologetic about the previous treatment ive received. I have had my hearing tested but was unable to...
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    Hi i looked into the vascuilits clinic in...

    Hi i looked into the vascuilits clinic in birmingham last night and got very excited theres a clinic that sees 300 of us each year, i definately need to go there, if you dont mind asking for me...
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    Thanks for that phil, i will do some research. I...

    Thanks for that phil, i will do some research. I feel even worse today, i think its the reduction in the pred last week, i find it so frustrating that i cant get hold of anyone to get any help, i...
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    i didn't realise hearing loss was so common, can...

    i didn't realise hearing loss was so common, can it be fixed at all!! im so fed up with not being able to hear my children speak to me, i keep thinking it'll return, but ive not been able to hear...
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    Thanks Pete, i will look into all that, ...

    Thanks Pete, i will look into all that,


    Another question is that i have reduced my steriods on wednesday and now i have pain when i sneeze again (ive become very sneezy again!) and my ears even...
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    Hi Thanks for replying I am on...

    Hi Thanks for replying





    I am on Omnaprozol for my stomach, but i think this is making me feel sick, and was going to ask if there is anything else i can take instead.

    You also mention...
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    just diagnosed and got lots of questions!!

    Hi All,

    I'm so glad ive found this website, and people that know what wg is without me having to explain!!

    I have just been diagnosed with wg after suffering with sinusitis and ear problems...
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