Search:

Type: Posts; User: Pete

Page 1 of 20 1 2 3 4

Search: Search took 0.06 seconds.

  1. Thread: Avacopan

    by Pete
    Replies
    10
    Views
    278

    Re: Avacopan

    Masha

    As I re-read the article, I saw no mention of rtx. Avacopan apparently induces remission all by itself ó no steroids needed. When I next see Dr Villa Forte (probably this fall), Iím going...
  2. Replies
    77
    Views
    8,917

    Re: New old guy on the block

    Nine years in now. I was released from OSU Medical Center nine years ago today. The past year saw my second minor (and third overall) flare. The disease remains well-controlled with an annual dose of...
  3. Re: A new year, new possibilities! (MikeG's back)

    Welcome back, @MikeG-2012!! Hope you get a lifetime of service with the new knee. I also hope the new eating plan gets you to your desired weight and keeps you there.
  4. Replies
    11
    Views
    204

    Re: Happy Healthy New Year

    mishb reported that it rained in Melbourne earlier today. I hope it keeps up and moves east. Stay safe!!
  5. Re: prescription process- the path from the Dr to the Pharmacy

    John S

    I must add a hearty Amen!!

    Happy New Year!!!
  6. Thread: Recent Diagnosis

    by Pete
    Replies
    9
    Views
    297

    Re: Recent Diagnosis

    Sajo

    For me, getting rituximab is pretty much a non-event. Youíll get a big dose of steroids (usually solu medrol), some Benadryl, and some Tylenol before they start the rtx. They start very...
  7. Replies
    11
    Views
    204

    Re: Happy Healthy New Year

    Back at you Masha!!!
  8. Re: How many got the Wegners or GPA Dx without a bx?

    Bradhunter

    I had a nasal biopsy that was inconclusive (but suggested wegs) and a bronchoscopy that yielded no definite findings. However, based on my symptoms and other tests, their most likely dx...
  9. Thread: Transplant

    by Pete
    Replies
    266
    Views
    30,222

    Re: Transplant

    gilders

    Merry Christmas, Pete!! Iím glad to hear your kidney continues to be effective. Hope that continues into the new year and beyond!!
  10. Thread: Newly Diagnosed

    by Pete
    Replies
    10
    Views
    419

    Re: Newly Diagnosed

    Don2000

    To answer your question. When I first got rituximab in 2014, I got four 500 mg doses a week apart once a year. For the past three years, I have gotten one 1000 mg dose annually.

    Iíve...
  11. Thread: Recent Diagnosis

    by Pete
    Replies
    9
    Views
    297

    Re: Recent Diagnosis

    Hi Sajo

    Welcome to the club. It sounds like your rheumatologist is working aggressively to get the disease under control. Rituximab takes awhile (4-6 weeks) for full effect. Cellcept acts a bit...
  12. Replies
    10
    Views
    360

    Re: Trying to figure it all out.

    Great news!! My first appointment with her lasted almost two hours. She went over my case history with a fine-toothed comb. You may want to put together a timeline of symptoms, diagnoses, treatments...
  13. Replies
    10
    Views
    360

    Re: Trying to figure it all out.

    Iím not aware of any vasculitis specialists at Cincinnati (That doesnít mean much, btw). I was diagnosed at Ohio State, but they didnít have as much experience with vasculitis as Cleveland Clinic. I...
  14. Replies
    10
    Views
    360

    Re: Trying to figure it all out.

    At Cleveland Clinic, the top two in vasculitis are Alexandra Villa Forte MD MPH (I see her - great doc) and Carol Langford MD (Department Head).
  15. Replies
    10
    Views
    360

    Re: Trying to figure it all out.

    Hi Robert!!

    Have you considered going to Cleveland Clinic for evaluation? Iíve been going there since 2012.
  16. Replies
    10
    Views
    360

    Re: Trying to figure it all out.

    robertlevigarrett

    At the moment, all I can do is welcome you to the club and hope your docs get your symptoms matched to a condition and treat it.

    My wife was diagnosed with autoimmune...
  17. Thread: Flare up?

    by Pete
    Replies
    2
    Views
    117

    Re: Flare up?

    Donna,

    It sounds like a flare to me. While we'd all like to be pred free, sometimes it takes a long time to get there. If you can't get rituximab soon, you may need to go on methotrexate and...
  18. Thread: Avacopan

    by Pete
    Replies
    10
    Views
    278

    Avacopan

    Could this be the treatment many of us are waiting for??

    https://www.biospace.com/article/chemocentryx-shares-rocket-300-percent-at-positive-vasculitis-trial-data/?TrackID=15
  19. Replies
    8
    Views
    322

    Re: just starting meds

    Bradhunter

    You may want to make the trek to Johns Hopkins anyway just to be sure you're getting care according to the latest protocols.

    I live in Columbus, Ohio, and you'd think Ohio State...
  20. Replies
    3
    Views
    166

    Re: Recently diagnosed

    Don2000

    Iíll second Drzís thought about consulting with a vasculitis specialist.

    For me, roaming joint pain and the purpura rash on my legs are indicators of a flare.

    Many of us have been...
  21. Thread: Leukemia

    by Pete
    Replies
    9
    Views
    549

    Re: Leukemia

    BobW

    Army 1966-68 (draftee)
  22. Thread: Leukemia

    by Pete
    Replies
    9
    Views
    549

    Re: Leukemia

    BobW

    Good luck. Thank you for your service from one vet to another.
  23. Thread: Liver Spots

    by Pete
    Replies
    2
    Views
    143

    Re: Liver Spots

    Iím 73, and I have a bunch of Ďem. Doc says not to worry. They go with the territory...
  24. Re: Journey to being diagnosed, treated, and already first flare up

    Youíre not that far from Mayo. If youíre not seeing a vasculitis specialist there, it would probably be in your best interests to go there.
  25. Replies
    3
    Views
    195

    Re: Doc required in Idaho Falls

    Closest wegs doc is probably in Salt Lake City or Seattle. In either case, itís a 3+ hour drive to Salt Lake City and 11 hours to Seattle...
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4