I have received 3 rounds of infusions (rounds are 2 visits each) but I normally dont feel too sick. When you say sick I'm thinking you mean nauseous or upset stomach and I did not have this. My...
Type: Posts; User: Onirin
I have received 3 rounds of infusions (rounds are 2 visits each) but I normally dont feel too sick. When you say sick I'm thinking you mean nauseous or upset stomach and I did not have this. My...
Hi Jim. A lot of your symptoms were similar to mine. I had intense headaches all the time that would not go away unless I was on prednisone. I was also going to the bathroom every 15 min but they...
ENT tested me for GPA and came back negative.
Admitted to hospital and they tested me for GPA, Negative.
After cross testing and a lung biospsy I finally tested positive for GPA.
My doctor says...
I'm so happy to hear the rituxan is working for you. It did wonders for me. I had my first dose in the hospital. It takes about 4 weeks to kick in but when it does I felt amazing. I had my first...
For me I had lots of little joint problems to start off with. I’m fairly young so I was embarrassed and thought I was just “out of shape” but looking back it was probably the start of GPA. Later I...
Thank you everyone for reading and your encouraging words.
For those that are curious I live in southern California.
At the moment I am pretty happy with my rheumatologist. There have been...
Hello! I have been reading the forums a while and now would like to share my experience with GPA which started in September 2018 at the age of 32. My family compares the ordeal to an episode of...