Search:

Type: Posts; User: vdub

Page 1 of 20 1 2 3 4

Search: Search took 0.06 seconds.

  1. Replies
    25
    Views
    1,845

    Re: COVID 19 and Wegener's - musings

    That's pretty amazing! Maybe we'll get back to flying and cruising again. This is really good news.
  2. Replies
    25
    Views
    1,845

    Re: COVID 19 and Wegener's - musings

    I'm surprised with your double pneumonia issues that you had such a light time with covid. Really glad that you did, tho. I hope your theory of good farm germs is on target as I grew up on a farm,...
  3. Replies
    25
    Views
    1,845

    Re: COVID 19 and Wegener's - musings

    I'm not well enough to tackle in car restorations or even finish my MG. I now have to hire someone to do the work on the MG. It's really hard to find a mechanic who knows how to tune a carb, let...
  4. Replies
    9
    Views
    502

    Re: An interesting twist...

    Very interesting twist. You are too new a member to remember "Jack". Jack was from the UK and was one helluva guy. He died from wegs around 2011 or 2012. Anyway, Jack often said, "just because...
  5. Replies
    25
    Views
    1,845

    Re: COVID 19 and autoimmune conditions

    Fun reading this, but even more fun to see all my old friends still on the forum -- too many to list. I communicate with emails daily with Andrew and Geoff, but don't get on the forum much anymore. ...
  6. Replies
    4
    Views
    278

    Re: Wegener's and surgery

    I was dx'ed with Weg's in 2010. Since then, I have had 13 surgeries -- about half were major, the others were just ho-hum. I don't recall having to do anything special due to Wegs. but I did have...
  7. Thread: Donations

    by vdub
    Replies
    130
    Views
    31,166

    Re: Donations

    The first msg I ever received on this forum was from ChrisTIn, so whenever I see a post from her, I take note -- there's a soft spot in my heart for Chris.

    So, Chris, do you not want to set up a...
  8. Re: My third anniversary of my Weg diagnosis is today.

    Very nice post, drz. You and I came onto the forum scene about the same time and, like you, I was thankful for all the support. I was lucky enough to meet Phil and Light Warrior before they passed...
  9. Replies
    12
    Views
    928

    Re: Diagnosed yesterday

    There's a few of us in the PNW, Jen. I'm in the very far southeast corner of WA. I'm sorry to hear you are joining our club.
  10. Replies
    133
    Views
    9,133

    Re: Coronavirus and GPA

    I guess the World Health Org should have listened to Bill. I have always felt that the WHO did little good for the world and wasn't more than a puppet organization. It really is a world issue and...
  11. Replies
    133
    Views
    9,133

    Re: Coronavirus and GPA

    Thanks, Christin. I think the problem is on Gilders side, but hard to say. I'm glad its working for you. What browser are each of you using and do you have an ad blocker or have you turned off pop...
  12. Replies
    133
    Views
    9,133

    Re: Coronavirus and GPA

    I'm not sure which one you are talking about. On what page? How do you get to it?
    When you click on it, what url does it take you to or does it just do nothing?
  13. Replies
    133
    Views
    9,133

    Re: Coronavirus and GPA

    <quote>I just heard two NY nurses committed suicide.<quote\>
    I haven't heard of 2, but I did hear of one in NY, one in Milan, and one somewhere in the UK. Interestingly, all of them committed...
  14. Replies
    133
    Views
    9,133

    Re: Coronavirus and GPA

    I don't get on the forum that much anymore. That doesn't mean I'm totally well or terribly sick, but rather I'm just overwhelmed by doctor appointments and trying to keep my drugs in stock. I'm...
  15. Replies
    9
    Views
    1,378

    Re: Wegener's and Graves disease

    I don't have Grave's, but I also don't have a thyroid, since it was removed 5 or 6 years ago. I would think the methimazole would work fine. I see it has the normal doom-and-gloom side effects...
  16. Thread: Avacopan

    by vdub
    Replies
    15
    Views
    1,335

    Re: Avacopan

    That's the way I read it, Masha. No pred would definitely be nice. However, surely there are some side-effects with this drug. Let's just hope they aren't bad.
  17. Re: prescription process- the path from the Dr to the Pharmacy

    At least you found something out. That's great!
  18. Re: How many got the Wegners or GPA Dx without a bx?

    Pred and mtx (low dose) would make you feel better if you had any number of different diseases; not just wegs. So, who dx'ed wegs? I was suspected to have wegs, but it wasn't confirmed until my...
  19. Thread: Medical Cannabis

    by vdub
    Replies
    7
    Views
    1,062

    Re: Medical Cannabis

    As soon as pot became legal in WA, I tried a variety of things to see what might help the pain. Since my neighbor owned the local pot shop, I was able to get free stuff from damaged packages or...
  20. Re: prescription process- the path from the Dr to the Pharmacy

    Interesting that no one mentioned the cost of rtx or, at least, I didn't see it mentioned. The reason I mention it is because it is semi-expensive, so I can guarantee you that it is going to get the...
  21. Replies
    8
    Views
    821

    Re: Newly diagnosed and Divorcing

    Bad deal, indeed. Annekat and I are both of WA, so if we are anywhere close, let us know.
  22. Thread: Donations

    by vdub
    Replies
    130
    Views
    31,166

    Re: Donations

    I'm on the road traveling, but didn't forget. I haven't been very active, but that means I'm having a good time. Happy birthday, mate, and cheers. Now I have to figure out if I can do PayPal from my...
  23. Thread: Lena's story

    by vdub
    Replies
    12
    Views
    1,045

    Re: Lena's story

    Hi, Lena! I'm not on here as much as I should be anymore. It means that things are going well for me. However, your comment about developing arthritis in your hands intrigued me. I have also...
  24. Thread: Nine years

    by vdub
    Replies
    6
    Views
    827

    Re: Nine years

    I forgot all about mentioning my anniversary, because it was the same day my Dad died and I was somewhat distracted. 21Apr2010 was the day they removed and biopsied my pituitary. Things changed a...
  25. Thread: Hereditary?

    by vdub
    Replies
    8
    Views
    1,940

    Re: Hereditary?

    My blood and spit was sent to Mt Sinai, Cleveland, and New Zealand. Have no idea what happened beyond dropping it in the FedEx pouch.
Results 1 to 25 of 500
Page 1 of 20 1 2 3 4