Is there anyone that is not on dialysis that has been approved to receive Full or Part Time Social Security Benefits for Wegener's Disease?
Type: Posts; User: amann8506
Is there anyone that is not on dialysis that has been approved to receive Full or Part Time Social Security Benefits for Wegener's Disease?
Anyone have any experience with this drug? Rheumy just prescribed today - a better alternative than methotrexate because husband and I were trying to conceive. That has been placed on hold, but I've...
Welcome Lindsey! So glad that you found this group - everyone is very helpful and informative. I was diagnosed in 2011 after a week in the hospital - my first hospital admission diagnosis was...
Good luck at your appointment! Hope all goes well:)
Has anyone had to have a trach put in due the the subglottal or tracheal stenosis? I had a dilation done 2 wks ago and have to have ER dilation done over the weekend. 2 weeks seems like a VERY short...
I seem to be coughing up more stuff this time. Which I'm assuming is a good thing. I did get a minor year during the dilation, so my throat is pretty sore and it's hard to swallow. Hoping I can go...
I do rinse Phil. Twice, sometimes 3 times a day. I also have a saline spray with Mupirocin in it to help keep things moist. But apparently it's not enough!
Just had another ER dilation done yesterday and they keep me overnight with a mask for humidity. I had so much crusting, I could not hardly breathe again. Pictures showed almost no opening!
Hey Phil - I had the balloon dilation done (laser cuts and the balloon). I'm thinking the bloody crusts are from draining through my nose. I had 2 windows put in my sinuses for better drainage. Dr...
Have an amazing time! Hope you feel better and get to enjoy it:)
I hate that part! It's the worst!
Welcome! This is an awesome place for venting and information. Can you tell us more about your husband's situation?
I had a throat dilation done 2 weeks ago and last night was having a VERY hard time breathing. After not sleeping much, and starting to become very scared, I called the throat specialist. He saw me...
That is awesome news! Congratulations:)
Just curious as to who everyone sees for their Wegener's. I have a Rheumatologist and 3 different Dr's at an Ear Nose and Throat Practice for each of those areas - Ear, Sinus and Throat. Do you all...
I always have to call to get my results! Hope you get some answers soon and feel better:)
I'm sure you are out there, but I'm looking for advice on becoming pregnant. I am 30yrs old and was diagnosed right after a week in the hospital after Christmas 2011. I have a beautiful daughter who...