Search:

Type: Posts; User: RiverJoy

Search: Search took 0.00 seconds.

  1. Thread: Transplant

    by RiverJoy
    Replies
    204
    Views
    19,137

    Re: Transplant

    Just marked my calendar! Will be praying for you daily! Believing that surgery on the 19th is going to go super smooth and a quick recovery afterwards!!
  2. Replies
    16
    Views
    937

    Re: Second Opinion

    Hi Christine,
    I hope you were able to get an appointment for a second opinion. When my health started snowballing, after being in the hospital for two weeks they wanted to remove part of my lung,...
  3. Replies
    15
    Views
    1,840

    Re: I love someone with Wegeners

    Hi Lynette,
    Welcome! I was extremely thankful as well when I stumbled across this forum. To find a community of people that understood what I was walking through meant a great deal! Will pray for...
  4. Re: Wegener's Rash or Medication/Sun Related?

    Thank you Pete! I'll see if I can get my labs done in the next day or two!
  5. Wegener's Rash or Medication/Sun Related?

    Hi Everyone!
    At the end of June I went down to 2mg prednisone and yesterday went down to 1mg prednisone.
    I requested to have my bloodwork done about 4 weeks ago because I had a cold and my right...
  6. Replies
    23
    Views
    2,660

    Re: New to Wegener world

    Hi Cathy!
    Hang in there! We get it! Good days ahead!!
  7. Replies
    13
    Views
    1,501

    Re: Pred Taper Completed

    So happy for you Pete!
  8. Thread: First Flare?

    by RiverJoy
    Replies
    9
    Views
    1,289

    Re: First Flare?

    I so appreciate all the feedback everyone!
    Going to try the conditioner trick and biotin!
    Thanks again!
  9. Thread: First Flare?

    by RiverJoy
    Replies
    9
    Views
    1,289

    First Flare?

    So I was on a slow taper, finally down to 4mg prep and then I caught what appeared to be a little cold, nothing really at all.
    I woke up the next morning vomiting (alot) and a little dizzy...
  10. Replies
    11
    Views
    2,050

    Thank you Gilders for all the info! My ENT had...

    Thank you Gilders for all the info! My ENT had suggested a CROS hearing device. I will look into whether this is the same type of hearing aid you're referencing to see if it will help with the...
  11. Replies
    16
    Views
    2,265

    Wow....you've been on a long journey! Thank you...

    Wow....you've been on a long journey! Thank you so much for sharing your experience. The info regarding your tapering does help me! Thank you! I'm going to continue with the slow taper...much...
  12. Replies
    16
    Views
    2,265

    Hi Treesie! Hope all is going well with your...

    Hi Treesie!
    Hope all is going well with your Prednisone taper! I was wondering how your doctor first started tapering you off? My doctor keeps me on a dosage for about 4 weeks, then brings me down...
  13. Replies
    11
    Views
    2,050

    Thank you John & Tom! I appreciate the input! ...

    Thank you John & Tom! I appreciate the input! Looking forward to being off Prednisone hopefully by summer's end...and not looking forward to staying on Imuran....BUT very thankful there are...
  14. Replies
    11
    Views
    2,050

    Hello! I am new to the forum....I was diagnosed...

    Hello!
    I am new to the forum....I was diagnosed on April 24, 2017 after a 3 week hospital stay of doctor's not being able to identify the two abscesses in my lungs. Along with the month prior...
Results 1 to 14 of 14