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Type: Posts; User: Mnjet

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  1. Thread: Avacopan

    by Mnjet
    Replies
    1
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    169

    Re: Avacopan

    Thanks for the info Marsha. I too can’t get off prednisone yet(only been on it since May 2019) but when I drop below 10mg I start getting symptoms again.
  2. Thread: Cataract Surgery

    by Mnjet
    Replies
    46
    Views
    6,249

    Re: Cataract Surgery

    Thanks for the information!
  3. Replies
    11
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    431

    Re: Happy Healthy New Year

    Wishing you all a very healthy and Happy New Year from Minnesota!
  4. Re: How many got the Wegners or GPA Dx without a bx?

    Hi Brad
    i was diagnosed with wegeners disease without a biopsy. I presented with severe vasculitis of nasal passage and sinus and positive anca. All other labs normal. I started on prednisone 60mg...
  5. Thread: Newly Diagnosed

    by Mnjet
    Replies
    10
    Views
    728

    Re: Newly Diagnosed

    Hi Marsha
    I was just diagnosed in May with wegeners of sinus. I started on prednisone, rituxan x2 in June. When my prednisone got down to 8 mg I had a flare. My prednisone went back to 10mg and...
  6. Thread: Avacopan

    by Mnjet
    Replies
    15
    Views
    664

    Re: Avacopan

    Thanks for the article Pete! Very exciting news for us!
  7. Replies
    5
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    290

    Re: Morning Sickness (Not Pregnant)

    I too had unexplained dental sensitivity ( for September and October) and increase left hip pain. I thought I was in remission. Towards end of October my sinuses were painful, saw my ENT, sinuses...
  8. Re: Journey to being diagnosed, treated, and already first flare up

    Thanks Pete. Iím seeing a rheumatologist. He seems to know about wegeners disease and right now I feel confident with him.
  9. Re: Journey to being diagnosed, treated, and already first flare up

    Hi~ I just joined this group and find it enlightening. I was diagnosed in May with GPA of sinus with positive anca and had a severe case of vasculitis in April. I started on prednisone 60mg/day, 2...
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