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Type: Posts; User: gigi.palumboshatz

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  1. Replies
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    Re: Wg destroyed my life

    Thank you so much


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  2. Replies
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    Re: Wg destroyed my life

    Thank you. It’s just not what I ever would’ve expected. It’s nice your relationship is strong. I will stay focused on myself and keep pushing forward.


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    Wg destroyed my life

    When I first came to this group I had a lot of support from my husband, as soon as I did Rtx he saw the IV bag that said chemo and he walked out on me after 28 years of marriage. We had no problems,...
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    WG -predisone - when does it end?

    Zarelto due to a PE and vitamins


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    Nope, rtx 4 round then the ctx and pred I thought...

    Nope, rtx 4 round then the ctx and pred I thought it was
    Protocol. Crap crap crap


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    I did rx four IV treatments, now I'm on cx and...

    I did rx four IV treatments, now I'm on cx and pred is this right?


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    WG -predisone - when does it end?

    I was dx may 2014, when am I going to end my cx and pred? I'm sick of putting these poisons in my body! I lost my hearing partially in my left ear and I'm not sure if it's due to meds or its lost due...
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    You are always so helpful! [emoji1] Sent...

    You are always so helpful! [emoji1]


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  9. Replies
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    Thanks!! [emoji106] Sent from my iPhone...

    Thanks!! [emoji106]


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  10. Replies
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    Oh, I didn't know that! Thanks for the info ...

    Oh, I didn't know that! Thanks for the info


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    I hope they are, I'm nervous! I went out today...

    I hope they are, I'm nervous! I went out today and just walking is still very hard, but if I don't go back I'll lose my job, so this awful thing has basically ruined my life.


    Sent from my...
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    That sounds like a good plan! Sent from my...

    That sounds like a good plan!


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  13. Replies
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    Going back to work!

    What is some advice about going back to work? I work at a desk job, but it's very demanding and I'm worried the stress could cause a flare up, what would be your advice?


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    http://tapatalk.imageshack.com/v2/14/12/17/cb07dd5...

    http://tapatalk.imageshack.com/v2/14/12/17/cb07dd59619b1c1f90bd29e02322be67.jpg

    This is my real pic-taken last night! I have bangs and blonde hair. My avatar is Snoopy because I wanted to marry...
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    I also live in Ohio ; Cincinnati ! Wow! Finally...

    I also live in Ohio ; Cincinnati ! Wow! Finally another person who lives here! I was recently diagnosed with this awful thing. I can't wait to be normal again!


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    I get so frustrated because I never have a normal...

    I get so frustrated because I never have a normal day, not sure if I am noticing it more now or what,it's crazy!


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    It's so helpful to have this information! Thank...

    It's so helpful to have this information! Thank you!


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  18. Replies
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    Thank you so much! This has really put my mind at...

    Thank you so much! This has really put my mind at ease. It's really been a rollercoaster of emotions. I thought I only had a few years to live, based on internet info, but now I know that's not true....
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    I have cried so much, it's actually got to the...

    I have cried so much, it's actually got to the point they didn't know what was wrong and were going to put me in hospice! Lucky for me a dr sent my records to cc and a lung resection and now I'm...
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    When looking back on the symptoms I think I've...

    When looking back on the symptoms I think I've had this a long time. I've been reading many posts and feel a lot better about this disease. I really appreciate all the support from site! I felt so...
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    I'm new to WG what are the Saline packets? ...

    I'm new to WG what are the Saline packets?


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    I'm new too! I'm trying to navigate this chat! :)...

    I'm new too! I'm trying to navigate this chat! :)


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  23. Replies
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    Just diagnosed - gigi.palumboshatz

    I recently have been diagnosed w Wegeners . I am very scared and unsure of what this means in term of my future holds. It took months to diagnose it, but the Cleveland Clinic finally figured it out....
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