Search:

Hi everyone. I have limited WG, diagnosed in 1989,. I have always had ANCA & PR3 showing in blood tests but most of the time not very high, but always present. ESR up and down but never reaching a...

Thanks everone for your support. It now seems to be like a frozen shoulder that is agony to lift my right are up. What a wreck.

Hope you are all well
Derek :(

Quick update. Not been on for a while felt a bit rough. Worse my right shoulder and arm muscle are so painfull I can not sleep. Pain killers make know difference.
Anyway hi again and I hope all is...

Hi Andrew

How do you get out the first room. I have found a test tube and a key behind the left panel which I can not access. There is a chair bolted to the floor infront of the door and a...

Thanks for all your comments they have helped me. Sinus lining removal sounds very grim, well done Jack for still having a sense of humour about it. As you say giving up is not an option.

Derek...

Thanks Sangye glad you are back I have missed your sense of humour.

What was the outcome of the whistling lung complaint and how has it effected you.

I saw on the internet that you can get...

Hi Marion

Welcome to the site. If you look round you will find a lot of information about WG. Glad you are in remission but do not get complacent as it will creep up on you. Take care and look...

Hi everyone.
Quick update.
I am seeing my Doctor next week when he has the latest blood test results (taken this morning) and Ultra sound results which showed fatty deposits on the liver and lots...

Welcome back Sangye, look forward to your input again

Derek:cool:

Hi Jolanta

I have the liver function test including Bilirubin every 4 - 6 weeks. The ultrasound scan I had yesterday showed that there were fatty deposits round the liver and that there were...

Hi everone
Has anyone any advice. I have had a flare and this time it has really gone to town on my muscles, mostly the shoulders arms and right knee are in constant pain and the hands and feet get...

Thanks for the advice. I think I will give them a miss as after reading your comments and thinking about it, if they worked the doctor would give you them.

Thanks

Derek:)

Hi Jack

I find it easier to say, I am fine thanks as, as crackers says that is what most people want to hear any way. I found if you go into any sort of detail people start to avoid you. I...

My liver function tests have risen even further and I have heard that
a herbal supplement of Milk Thistle Tablets once a day can help to detoxify the liver. Has any one heard or tried these tablets...

Hi Raj
Welcome sorry I had to greet you under these circumstances. Glad you are now under treatment. I have had WG for over 20 years and it has been a bit of a rollercoastser but I have got use to...

Hi Guys

Thanks for the support. Pain update. My knee is not as painful but the pain has moved to my elbows and hands. Oh what fun we have.

Keep well

Derek:(

Thanks Jack & Terri for your support.

Hope you are ok today

Derek

:eek:The Muscle and joint pain has got much worse. My worse areas are my right shoulder and left knee. Knee is so bad I can hardly walk. Also feeling run down and unwell. Other than that...

Thanks John I will ask the doc

Derek

Sorry to whinge again but has anybody had bad muscle pains. I have been getting them and they have been increasingly getting worse, in the shoulders (Worse on the right side), arms Legs and Knees. ...

Jack

I hope it all goes well

Derek

Hi Doug

Here is something gross that I saw at the weekend. I was in the supermarket and over hear (UK) they have these fold down child seats near the pushbar. There was a girl about 3 to 5 (no...

Hi Terry

I take Methotrexate weekly and I found it upset mt stomach badly. I used to take it at night with my other meds. My doctor said that if I could not tolorate it orally then I would have...

It takes me 2 weeks plus to get my anca results. I have asked and was told they have to culture and stain them and also do a PR3 test.

Glad you are feeling better

Derek:)

I have heard that we could be born with a genetic trigger for WG along with other conditions; these triggers can be fired depending on what happens in your life. I was very ill in 1988 with a strep...