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Type: Posts; User: Cindy M

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  1. Thread: Root Canal

    by Cindy M
    Replies
    52
    Views
    8,904

    Hi, just read about your absessed tooth. I had...

    Hi, just read about your absessed tooth. I had to have two teeth pulled that were part of a bridge because of the same problem. I was put on antibiotics to clear up the infection before pulling the...
  2. Replies
    19
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    4,446

    Hi, I am sad to hear that cellcept didn't work...

    Hi, I am sad to hear that cellcept didn't work for you. I am just starting cellcept and I am hoping that it is the drug for me. I have been on methatrexate, 2 rounds of IV ritux and over a year on...
  3. Thread: Wegener what?

    by Cindy M
    Replies
    21
    Views
    6,283

    Welcome Enrique, It sure sounds like you have...

    Welcome Enrique, It sure sounds like you have been through alot. This disease has a mind of its own. I am glad that you were able to get through your first round with Wegs.
  4. Replies
    41
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    6,345

    I have had a somewhat similar situation happen to...

    I have had a somewhat similar situation happen to me. I changed the pharmacy for where I pick up my prescriptions and I am sure glad I did. The technician noticed all the meds I had been on and...
  5. Thread: News of Jack

    by Cindy M
    Replies
    1,030
    Views
    159,181

    Hi Jack, it sure seems like you have been through...

    Hi Jack, it sure seems like you have been through alot. I hope something starts to control this pain you are in. With all the meds that we are on its no wonder that you are feeling so nauseated. I...
  6. Thread: Funny Stuff

    by Cindy M
    Replies
    748
    Views
    112,958

    Hi, I have a question but was not sure where it...

    Hi, I have a question but was not sure where it would fit in so I decided this might be the best place. I am planning on going on a little holiday. My question is: Is it safe to go into the hot...
  7. Replies
    21
    Views
    4,182

    Thanks, I will try and hang in there. I have...

    Thanks, I will try and hang in there. I have been on cyclo for over a year now and 40 mg of preds is the lowest dose I have been on since I started in Jan/09.
  8. Thread: News of Jack

    by Cindy M
    Replies
    1,030
    Views
    159,181

    It's nice to see you back.

    It's nice to see you back.
  9. Replies
    21
    Views
    4,182

    Hi, I can relate to Cathie and feeling tired and...

    Hi, I can relate to Cathie and feeling tired and exhausted. I too often wonder if its the meds or the disease. Lately though I have been feeling really depressed. Every day I am struggling with...
  10. Replies
    27
    Views
    4,300

    Thanks for the nice words. I am not sure...

    Thanks for the nice words.

    I am not sure what I did, when I was in bed I was trying to pull the sheet from underneath me and felt a sharp pain and then depending on what I was doing it got...
  11. Replies
    27
    Views
    4,300

    Sangye, I am so glad to hear that you will be off...

    Sangye, I am so glad to hear that you will be off the preds soon. I am down to 40 mg a day which is the lowest I have been on since I started in Jan/09. I really like your explanation about the...
  12. Thread: Facebook

    by Cindy M
    Replies
    31
    Views
    5,260

    Doug how long has it been since you have been off...

    Doug how long has it been since you have been off of prednisone?

    Sangye why is it that our blood work can come back better when we are still feeling so crappy?
  13. Replies
    25
    Views
    4,493

    When I was going for my sinus biopsy to confirm...

    When I was going for my sinus biopsy to confirm WG my ENT had an opthamologist take a look at my right eye because I kept it closed most of the time. It was very sensitive and blurry and I found it...
  14. Replies
    36
    Views
    5,302

    I too get alot of brain fogginess. I would have...

    I too get alot of brain fogginess. I would have missed my bone density test had I not cleaned my purse out the day before and went through everything. I also have a calendar in my purse which I...
  15. Replies
    127
    Views
    18,176

    Muffin top around the jeans, how about looking...

    Muffin top around the jeans, how about looking and bending like your 9 months pregnant. What am I saying, I weighed less when I was pregnant.
  16. Replies
    25
    Views
    4,493

    Hi Dee, really pay attention to your eyes. I...

    Hi Dee, really pay attention to your eyes. I made a mistake last summer and kept putting off the problems with my eye. Went to my optometrist who treated me for an infection when it was WG related....
  17. Replies
    127
    Views
    18,176

    Great pictures Sangye. Life with preds.

    Great pictures Sangye. Life with preds.
  18. Thread: Facebook

    by Cindy M
    Replies
    31
    Views
    5,260

    I agree with all of you. This site has been the...

    I agree with all of you. This site has been the best thing for me. I am not on it very much because I am living with my sister while I am waiting for my place to be finished so my usual routine is...
  19. Replies
    20
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    3,311

    I had no idea that we were more prone to heart...

    I had no idea that we were more prone to heart attacks and strokes. I gues at my next appointment I will be checking to getting an echo cardiogram. I did have a bone density test done last week.
  20. Replies
    45
    Views
    8,204

    I haven't been to the dentis since November of 08...

    I haven't been to the dentis since November of 08 when I started getting sick. In October of 08 I had some dental surgery done on both sides of the upper teeth. I have bridges on both sides and...
  21. So sorry to hear about the loss of your dad. ...

    So sorry to hear about the loss of your dad. That stress alone is alot to deal with, without the flareup of WG. I hope everything goes well on friday. Let us know how you are doing.
  22. Replies
    70
    Views
    9,425

    I am taking calcium vitamins but I am not sure...

    I am taking calcium vitamins but I am not sure about my potassium and magnesium levels. I also take Vitamin D. I went for a bone density test today and will get the results back in about 1 week. ...
  23. Thread: Weight Gain

    by Cindy M
    Replies
    25
    Views
    5,552

    I too am disappointed with the weight gain. I...

    I too am disappointed with the weight gain. I find between WG and the weight gain it all really controls my life. I keep hoping that next week will be better. I am finally lowering my preds again,...
  24. Replies
    70
    Views
    9,425

    I agree with Col 23. I have alot of the same...

    I agree with Col 23. I have alot of the same symptoms, my left foot and ankle swell instantly as soon as the weather turns warmer. Never had this problem before. I also get alot of leg and feet...
  25. Replies
    144
    Views
    23,001

    I have been up and down for the last year. The...

    I have been up and down for the last year. The lowest I got down to was 40 mg but that didn't last long. I went to see my Rhuemy today, not much of an improvement if any on my blood work. What she...
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