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Type: Posts; User: jeff rizz

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  1. Good luck with your fight. I was denied 2 times...

    Good luck with your fight. I was denied 2 times and had two hearings at the SSD office in front of the judge. It took a total of 2 years to finally get a favorable approval. I would highly recommend...
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    Question regarding eyes.

    I was wondering if anyone else has a hard time wearing contacts since being DX. I have a terrible time when I put them in after about an hour or two they are driving me crazy. My eyes become dry and...
  3. I have learned that when you are down and out you...

    I have learned that when you are down and out you find out how important your family and friends really are!

    I have learned not to take the things for granted and to enjoy the little things in...
  4. Thread: Joint Pain

    by jeff rizz
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    1,313

    I have more trouble breathing in the colder...

    I have more trouble breathing in the colder weather than the joint pain. When I have joint flares I normally ice them down rather then put heat on them. The heat wraps seem to make the pain worse. It...
  5. Thread: Joint Pain

    by jeff rizz
    Replies
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    1,313

    My joint pain always seems to be worse in the...

    My joint pain always seems to be worse in the heat and humidity! One of the many Doctors that I have seen suggested that some auto immune diseases are seasonal and that Wegner 's could also be. Has...
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    Social Security Disability!

    I have just received notice from Social Security that the judge decide to rule my disability case fully favorable! So after 2 denials, 2 hearings and a two year fight with them it is finally over! I...
  7. I was intubated for a week while in the ICU. Both...

    I was intubated for a week while in the ICU. Both of my lungs had collapsed after the lung biopsy to Dx the Wegners. My lungs where both filled with blood,had to have two chest tubes inserted one for...
  8. I had my disability hearing set for 07/07/10. I...

    I had my disability hearing set for 07/07/10. I drove over an hour to get there, was freaking out all week about going in front of the judge. The judge called my lawyer in to her room and told him...
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    When I was admitted to the hospital , they...

    When I was admitted to the hospital , they thought that I had both Wegners and Good pastures and was getting treated for both while on life support. I had 10 treatments of plasmapheresis and the pred...
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    I am in contact with JHU. Has anyone here been...

    I am in contact with JHU. Has anyone here been there? if you do how do you like going there? Did anyone have a tough time getting all their medical info? It seems that any time I try to get this info...
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    Thanks Sangye. I don't think that you have nagged...

    Thanks Sangye. I don't think that you have nagged me before, but I have seen that a wegners specialist is top on your list of things new patients should go see. Up until now I have been doing pretty...
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    i was diagnosed with wegner's in Sept. 08. I am...

    i was diagnosed with wegner's in Sept. 08. I am still relatively new at this! Had major lung involvement, both lungs collapsed after lung biopsy to test for wegner's. was on life support for a week,...
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    wegner's with fibromyalgia?

    has anyone been dx with fibromyalgia after being dx with wegners? thought that I was flairing put on a pred pack of 40 mg 2 days, 30 mg 2 days, 20 mg for 2 days then 10 mg till I have my appointment...
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    Hi, I have also noticed that my eyes have become...

    Hi, I have also noticed that my eyes have become more watery as my pred has been reduced. Just reduced to 30mg from 40 mg. Just figured that it was part of this crazy wegners ride. Always get...
  15. Anyone here that has dealt with social security disability

    I was dx'd in Sept 2008. I started with severe joint pain, skin nodules, consistent coughing, hoarseness and then coughing up blood. I spent three weeks in ICU and one of those weeks was on life...
  16. Thread: Eastern USA?

    by jeff rizz
    Replies
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    14,004

    I live in Pennsylvania. What area of the state...

    I live in Pennsylvania. What area of the state are you from? I was Dng in 09/08 with wegners. I see that you had said in one of your posts that her blood work was sent to Geisinger at hershey. Are...
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