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Type: Posts; User: me2

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  1. Re: Outlook on recent diagnosis with lung complications

    I don't have a lot of experience with this but I do know of cases of people only have tracheotomy for a short period of time. My suspition is that it was more common in the past when treatments were...
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    Re: Possible Wagner's but still in limbo

    My biopsy was ordered by the ENT. I think this is the usual route. I like your idea of polite demand. One of my great lessons of this illness is becoming my own strong advocate. I have had this...
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    Re: Possible Wagner's but still in limbo

    Welcome. Your collection of problems certainly SOUND like they could be wegener's. If Wegener's is high on the suspect list then I would be very concerned about having to wait months to see a...
  4. Re: prescription process- the path from the Dr to the Pharmacy

    Update - 33 days after being prescribed Rituxan I now have an appointment to get the infusion- and a notebook of notes almost an inch thick. I need to just de-stress and get ready for the 5 hour...
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    Re: Happy birthday to me

    You have anything special planned? I think you need to get yourself a gift of some sort.
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    Re: Feeling frustrated.....

    I soooo understand your position. I've been told my current delays are 'because of the holidays' also. It doesn't help to hear that- it just doesn't. Our illness doesn't observe the holidays.
    It...
  7. Re: prescription process- the path from the Dr to the Pharmacy

    I DO appreciate your responses and your concern.
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    Re: A new year, new possibilities! (MikeG's back)

    It's good to hear that you are doing well. I have been through many ups and downs with prednisone weight myself. One of my 'secret weapons' is called "Miracle Noodles". Prednisone causes weight...
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    Re: How's all our Aussie friends?

    I had a visit with Anne today and we were wondering about y'all down there too. Hope everyone is out of harms way.
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    Re: EustachianTube Dysfunction: Balloon Dilation

    That's great you have gotten some good mileage out of your tube Randy. I also have tinnitus. I've looked for and tried some solutions for that but it appears there are not great options- yet. I told...
  11. Re: prescription process- the path from the Dr to the Pharmacy

    Thanks Masha. I have wondered the same things.
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    Re: EustachianTube Dysfunction: Balloon Dilation

    I have had a dodgy ear for over a year and just recently had a tube placed in it. I can HEAR again in that ear. It is such a wonderful thing. I was told that the tube might last a year and "If it...
  13. Re: prescription process- the path from the Dr to the Pharmacy

    First, I want to thank you all who have responded with ideas and encouragement. After twenty years of chemotherapy, illness , pain and prednisone (yes, for the ENTIRE time I have had all of this...
  14. Re: prescription process- the path from the Dr to the Pharmacy

    Wow DRZ , you have truly been in the black hole.

    I had to wait another day and I'm not sure things are still straightened out yet. Of course the TELL me it is but I was also told that two...
  15. Re: prescription process- the path from the Dr to the Pharmacy

    Those are some good ideas. Thanks for taking the time. I will let you know how it works out.
  16. prescription process- the path from the Dr to the Pharmacy

    I hope someone knows how this works. My mind is in a fog but even with that I think the problem is not me but some system I don't understand.

    Sixteen days ago my Dr wrote a prescription for me to...
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    Re: What is the smallest dose of Rituxan?

    John , one more thing I forgot to add (hard to believe a post that long left ANYTHING out huh? )

    Even if you are not currently using or needing Bactrim , if it were me, I would still want to try...
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    Re: What is the smallest dose of Rituxan?

    Hi Alysia,

    thanks for your ideas. Its very helpful. Anne has given me some good ideas too. I cannot think well for myself these days. You are right about IVIG. I kinda forgot about it. I cant...
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    Re: What is the smallest dose of Rituxan?

    Hi Anne, thanks for the reply and your concern. Cytoxan , in spite of how bad it sounds, has been a very effective treatment for me. It also works very quickly compared to Rituxan. I'm wondering if...
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    Re: What is the smallest dose of Rituxan?

    Hi John,
    I have not been taking an antibiotic with Rituxan. As I have had infections I've been prescribed antibiotics specific to whatever infection I have. In recent times it is usually pseudomonas...
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    What is the smallest dose of Rituxan?

    My immune system has been depleted to super low levels by years of Rituxan and other medications and yet, I am still having a WG flare and need to get on a primary immune suppressant. Methotrexate...
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    Re: Symptoms DURING remission.

    Alysia,

    Thanks for your ideas and consideration. It is very helpful to me. Much appreciated.

    Kirk
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    Symptoms DURING remission.

    I don't have time at the moment to type out my current situation but I very much would like to hear about other peoples experience of having something go wrong DURING remission.

    By remission I...
  24. Thread: Donations

    by me2
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    Re: Donations

    Happy Birthday Man!!
  25. Thread: Igg

    by me2
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    Re: Igg

    I am facing this issue. Thanks for posting your information.
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