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Type: Posts; User: amy.r.kahl

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  1. Thread: Prednisone

    by amy.r.kahl
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    3,449

    Prednisone

    Hello fellow WG patients
    I was wondering how you all cope with prednisone?? I was initially put on 80mg and it caused me to have serve symptoms such as personality changes and caused me to be manic...
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    I just got diagnosed with trachea stenosis and...

    I just got diagnosed with trachea stenosis and this definitely makes me feel better some stories on here scare me more than help me but this definitely helped me be strong. I really appreciate this...
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    I definitely have fatigue when especially when...

    I definitely have fatigue when especially when I'm having a flare up. I try to push through it as long as I can. I find that going on a walk gives me a new burst of energy but you have to push...
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    Well I had the scope and they confirmed that I...

    Well I had the scope and they confirmed that I have it :( I'm really worried about it. So yeah Alysia I'd like that my profile is private so let me give you my email so they can add me...
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    Dr Jason Springer @ KU Medical

    Has anyone met this doctor Dr Jason Springer and if so could you share your experience with him, and what you thought of him. Thanks I would appreciate it.
    Take care
    Amy


    Sent from my iPhone...
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    Tracheal stenosis???

    Do any of you members have trachea stenosis ? And if you do; id appreciate anything you can tell me about the procedures used to diagnosed it. Basically you're story with dealing with this issues. My...
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    Having GPA....fatigue is just part of the...

    Having GPA....fatigue is just part of the disease, you're body's working extra hard to destroy healthy tissue, then there's the treatment drugs, and having to go to the doctor all time. I'm always...
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    SPECIALIST dr Jason Springer @ UK

    Hello
    I'm wondering if anyone has seen him ? I'd like to here the good and bad!! I have an appt with him in March. Any info is appreciated!!'
    Thanks
    Amy


    Sent from my iPhone using Tapatalk
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    Symptoms & Age

    As I read the forums on here I noticed some of you say you have had this since your 20s or 10-20 years. My question is has your flare ups gone down with age? Or is it you've finally just found the...
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    Bdawg212 I remember every doctor that I have...

    Bdawg212 I remember every doctor that I have seen....and fired. Just BC one specialist was rude doesn't mean all are rude. And that guy has some of the most scary symptoms I've heard of I mean come...
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    Really what doctor was it? Is your blood test...

    Really what doctor was it? Is your blood test positive or negative?


    Sent from my iPhone using Tapatalk
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    Bdawg212 don't let one persons ignorance be...

    Bdawg212 don't let one persons ignorance be yours. You have to be able to trust your doctor. Find another one!! I know it's hard being sick and dealing with doctors nonstop but you have to know your...
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    I agree with dirty don I was told when I first...

    I agree with dirty don I was told when I first started taking it that its full effect may not be seen until 6 months also I believe that since its a new drug doctors are being very conservative with...
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    Before they diagnosed me I was in so much pain in...

    Before they diagnosed me I was in so much pain in my lungs I could barely move it felt like crawls digging into my heart and some putting bricks on top and on the sides and squeezing they found lung...
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    Hey Eric54 I was looking at him but will he take...

    Hey Eric54
    I was looking at him but will he take MO Medcaid and Medicare ? I was wondering cuz he's at KSKU not KSMO. Did you have to get a referral ? I got put on disability and got Medcaid. ...
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    Congrats on the baby !!! Don't let WG ruin this...

    Congrats on the baby !!! Don't let WG ruin this beautiful time in your life!!! I completely understand you not wanting to take the prednisone it is a horrible drug and I refuse to take it but I'm on...
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    Eric I dunno if you believe in God but someone...

    Eric
    I dunno if you believe in God but someone once told me that he gives his hardest battles to his strongest soldiers. Sorry to hear about it affecting ur kidneys that's my worst fear it seems....
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    new member amy

    Hello fellow WG

    This is the first time I'm actually doing anything like this. I've been embarrassed about being sick. I was a nurse and it definitely has changed my life. I spent the whole...
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    Hello fellow WG This is the first time I'm...

    Hello fellow WG
    This is the first time I'm actually doing anything like this. I've been embarrassed about being sick. I was a nurse and it definitely has changed my life. I spent the whole summer...
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