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So I usally get a good cleaning at the ENT. They joke that I make them work for their money. I know it was a good visit when my teeth are sore afterwards. That means they cleaned out a ton of...

I have yet to go in remission, so I will probably not have surgery soon. I understand your predicament. I also have no septum left, and now I need a CPAP machine at night, but my glasses hide my...

I am not sure where you are, but I love Christine Savage. She is through UM and is great. She does not specialize in GPA, but is a Rhumey.

I am in a bit of a quandry and would love some input. I am not thrilled with my Pulmonolgist and his office.

Wait times are usually really long.
He has had to cancel appointments (I have taken...

Thanks for the info. I was driving myself nuts looking online for Wegs dogs. ( I must be bored) I know they have service dogs, for other diseases, so I was thinking along those lines. Gee - I feel...

Hi there. I have seen a couple of members mention wegs dogs. Can anyone give me some more information or a link? I am really interested in the idea, but would need the particulars.

Thanks a...

So, I am going through my first roud of RTX (last dose on Friday), and I am down to 10 mg of prednisone. How does everyone feel when they go in to remission, and how quickly does it happen? I am...

I should have put NO side effects. I need to learn to type.

I am going through Rituxan right now (3rd Appt is tomorrow), and I have had side effects. Actually, I have felt really good afterward. I chose Friday as well, since I am still working full time,...

Hi Don,

Yes I am also on Predmisone, but have been since February, and the watery eyes are a new thing, so that it why I put it with the MTX. Thanks for your input.

Good Afternoon Everyone.

I just started MTX on Saturday (2@ 2.5), and I have noticed that my eyes are watering every day. Has anyone else had this problem? it is driving me crazy, and it looks...

Good Afternoon Everybody.

Has anyone been been diagnosed with Graves disease (Hyperthyroidism) after being diagnosed with Wegeners? I am trying to get some information on medications and what to...

My Wegener's has attacked my sinuses, so my sense of smell is really limited, and my taste buds are really weak. I have to keep checking with my husband on flavors and smells. My tastes have not...

I have hand tremors as well. My doc says it is because of the pred. I notice it mostly when I pick up something to drink. Needless to say, I do not fill my coffee cup as full anymore.

My sinus surgey has been wonderful too. I feel so much better. I only had it a month ago, so I am still healing and there is still a lot of swelling and crusting. I will just be thankful when I...

Thank you all for the support and information. It has been great. i guess i am in a slightly different boat than some of you. My WG is all confined to my sinuses. It has not spread to my kidneys...

Good Morning. My name is Julie, and I have been diagnosed for less than 2 weeks. The WG presented in my sinuses back in November, but I thought it was just a bad sinus infection. Nothing seemed to...