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  1. Thread: Flu vaccines

    by Hopeful
    Replies
    119
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    28,024

    Hi Andrew. I think we have the same one. (?) ...

    Hi Andrew. I think we have the same one. (?) Paul Gatenby at National Capital Private Hospital. I've done a small display on him and his immunology research here at the science library. I suppose...
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    My belief - and there is no scientific evidence...

    My belief - and there is no scientific evidence to support it - is that there are perhaps 3 different optimal eating patterns, and that one pattern can "borrow" a little bit from another. I came to...
  3. Thread: Flu vaccines

    by Hopeful
    Replies
    119
    Views
    28,024

    I got my bloods done and my ANCA did not rise, so...

    I got my bloods done and my ANCA did not rise, so the flu shot did not trigger a flare, thank goodness. Unfortunately it did appear to give me the flu. Feeling typically flu-ish for the past 2...
  4. Thread: Flu vaccines

    by Hopeful
    Replies
    119
    Views
    28,024

    I'm from Canberra. Thanks to everyone for the...

    I'm from Canberra. Thanks to everyone for the warm thoughts. Called my immunologist and heard back from him within the hour. Did my bloods this morning (late for work - boss angry), upped the...
  5. Thread: Flu vaccines

    by Hopeful
    Replies
    119
    Views
    28,024

    OMG! I had the flu shot in April and have been...

    OMG! I had the flu shot in April and have been suffering with intermittently flu symptoms ever since - fatigue, headache, painful joints. Don't know whether the current (southern hemisphere)...
  6. The damage from Wegs has hindered or limited my...

    The damage from Wegs has hindered or limited my ability to stay involved in most of the groups, and activities I enjoyed before the illness. Loss of hearing, limited energy, limited walking were real...
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    Sangye, thanks for letting us know. I have a...

    Sangye, thanks for letting us know. I have a good book on Wegeners (and other auto immune diseases) that I take with me to the eye doctor so he know what sort of things to be looking for. I also...
  8. Thread: weight gain :(

    by Hopeful
    Replies
    124
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    20,709

    I'm in Australia. In terms of weighing yourself,...

    I'm in Australia. In terms of weighing yourself, ya' gotta do what works for you. Weighing myself once or twice a week got me up to 200 lbs (199.6 actually) which was a real wakeup call, so I knew...
  9. Thread: weight gain :(

    by Hopeful
    Replies
    124
    Views
    20,709

    My regimen was lots of fish, vegetables, fruit,...

    My regimen was lots of fish, vegetables, fruit, and yogurt. Everything eaten in 150 calorie portions with no meal exceeding 550 calories. Snacking was allowed in order to increase nutrition (veg or...
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    Welcome Lynn and Abby! A few tips: I think...

    Welcome Lynn and Abby!

    A few tips: I think the main thing I would like to say (and I think I read it in this forum) is get to know how your body responds to different drugs, foods etc. This can...
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    I also have loopy (wierd) eyes. The left one...

    I also have loopy (wierd) eyes. The left one runs most of the time - particularly in cold weather. My immunologist says it is because the WG has deposited dead cells in the lacrimal-naso (sp?) duct...
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    This is a very interesting discussion! Everyone...

    This is a very interesting discussion! Everyone has their own perceptions (truths) about what death is and all we can do is share them and maybe, just maybe, they will help and comfort others. My...
  13. Replies
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    I've been on 10 mg since January 25th. I was on...

    I've been on 10 mg since January 25th. I was on Aza at the time and not making progress towards remission. Got a new doctor (immunologist) in June and was put on mtx. Mtx is working and I feel as...
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    Psyborg, though I haven't been on massive doses...

    Psyborg, though I haven't been on massive doses of Pred, I was at 25 mg for 6 months. I think everyone has that magic threshhold where reducing at your regular rate makes the wg symptoms reappear,...
  15. Hi LisaMarie. Unlike the others, potassium...

    Hi LisaMarie. Unlike the others, potassium didn't help. I add a little iodised salt to my diet. It has helped the cramps, but I walk a fine line so I don't get so I don't get too much sodium and...
  16. Hi drz. Balance problems, in my case, seems to...

    Hi drz. Balance problems, in my case, seems to be mostly related to the inner ear. There is constant fluid in the middle ear which resolves with a grommet. When the ear is dried out the balance...
  17. Thread: Weggies & Work

    by Hopeful
    Replies
    91
    Views
    13,024

    Hi Sangye, Thanks for the input. They did...

    Hi Sangye,

    Thanks for the input. They did tests and I did have pneumoniasis aureus (I think I've spelled it right). Despite the fact that I had difficulty shaking the pneumonia, I seem to have...
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    Hi Andrew, I just saw you are in Canberra. ...

    Hi Andrew,

    I just saw you are in Canberra. Who is your WG doc?
  19. Thread: Weggies & Work

    by Hopeful
    Replies
    91
    Views
    13,024

    Hi elephant. My wegs story begins in June 2008. ...

    Hi elephant. My wegs story begins in June 2008. Caught a resistant form of pneumonia from some idiot on the bus. Thought antibiotics had knocked it out but was still unable to exercise without...
  20. Thread: Weggies & Work

    by Hopeful
    Replies
    91
    Views
    13,024

    Hi malin, I've been lurking here trying to...

    Hi malin,

    I've been lurking here trying to find out how "odd" I am disease-wise compared to others. My apologies for not sharing. I work a standard 35 hour work week as a librarian. This...
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