Shocking news. R.I.P. Phil
Type: Posts; User: Widthofacircle
Shocking news. R.I.P. Phil
In wish you the best of luck CgM
Thanks Michelle.
It is like a new lease of life. As I say fingers crossed all will be well. I gave up smoking 5 years ago which, I can tell you was a big achievement for me and giving up pred is way...
I have been pred free for a week now following a slow taper. Diagnosed in April 2009, it's been a long hard road. Fingers crossed I will have no adverse effects as I have been looking forward to...
Checked :glare: . Everything in perfect working order. Haven't heard of that problem before!!
Thanks Don
I think you are exactly right. Each time I get flu I get symptoms such as sore and runny eyes and ears popping. Only problem is the flu seems to last forever since I was diagnosed. Before...
Thanks Michelle
Good to see so many long term members (and newbies ) still here. Yeah hopefully it is just the flu.It is doubly bad though when it id MAN flu with Wegs thrown in for good...
Hi Debra
Last bloodwork done 3 months ago were clear. Next bloods at end of April so fingers crossed:thumbup:
Brendan
Hi Everybody
Have not been posting here for quite a while but I check in regularly to see what's going on. It's 5 years now since I started out on this rocky road that is Wegeners. I am reasonably...
Hi Rif
That is the same dose as me. I take 3,000 mg Cellcept and 5mg pred. This seems to keep me stable. I have been on this dose for 18 months now having gone through the horror story that began in...
Hi Stephen
You may have missed an earlier post from me in this thread telling you of my knowledge of other Wegs sufferers in Ireland. In addition to that I have also heard of a 12 year old girl in...
Hi Stephen
My grandfathers name was John Joe Sheehy. I don't know of any relatives living there now. His family left when he was quite young. I have heard of one other person with Wegs attending the...
Hi Stephen
Brendan here from Dublin. Good to come across an Irish person here and from Kilmallock, my grandfather came from there. Sorry to hear you have been diagnosed with Wegeners. I was...
Hi Natalie
Not to spoil the favourite songs thread but noticed you are on exactly the same maintenance drugs I am on but you have obviously been on them much longer than I have, being diagnosed in...
Did you get to listen to any Nick Cave? He is an acquired taste... a bit like Leonard Cohen on speed haha
Gotta be David Bowie for me and a bit of Nick Cave
Brendan
I get this all the time. Constantly hoarse and clearing the throat and blowing nose. Otherwise fine.
Brendan
Very sad news. Condolences to Al,s family and loved ones.
Brendan
For me it has been eyes,ears,joints, sinuses,lungs and kidneys.
Brendan
Hi Louise
Thankfully I have not experienced saddle nose so will just say Hi and welcome
Brendan
Been on 3000mg for about 18 months now. I take 1500 first thing in the morning and the balance around dinner time. I have had no real problems
Brendan
Hi Yvonnea
I live in Ireland but my eldest son lives in Koping in Sweden.
He is a musician and loves his life there
Brendan
Well spoken Al.
Reet, sincere condolences on the loss of your Dad and like Al, I would like that you stay in touch with us here in the future.
Brendan
Sangye
Jack had a brilliant sense of humor. I remember when I first joined here being uplifted by his straight talking in relation to dealing with WG. He was so direct with his descriptions of the...
Happy New Year Friends!!!!
Brendan