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  1. I am a Weggie and live in South Florida. I was...

    I am a Weggie and live in South Florida. I was recommended by Yale University, when I went there for advice, Dr. Eileen Tozman rheumatologist at University of Miami.She is a brilliant doctor and...
  2. Hi Patty: I'm still off dialysis. When I first...

    Hi Patty: I'm still off dialysis. When I first had it, back in January 2015, nephrologist said there was a possibility of getting off it. I have been off it since April.They did bloodwork this week.I...
  3. Magnolia The reason I went on dialysis back in...

    Magnolia
    The reason I went on dialysis back in February, was because I had taken three rounds of antibiotics for a respiratory infection. After a few weeks of dialysis, much to my surprise, they...
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    Magnolia I was diagnosed with Hashimottos...

    Magnolia
    I was diagnosed with Hashimottos Thyroidytis about 30 some years ago. My wegners, which was partial in the beginning, started in 2002. I was told that once you have an autoimmune disease,...
  5. I was taken off dialysis after about three...

    I was taken off dialysis after about three weeks....Hurray! I prayed so hard, and God heard me.I read that people with Wegs who need dialysis, recover 3x as often as other patients doing dialysis...
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    I certainly am impressed hearing about the...

    I certainly am impressed hearing about the courage and resilience of wegeners patients. You certainly are a great source of info and support.I am now struggling, trying to
    get off dialysis.The...
  7. I started dialysis back in February. My kidneys...

    I started dialysis back in February. My kidneys recouped and i was dialysis free for one month. However, I got a UTI and /Dr. prescribed antibiotics. Guess what?
    My kidneys went bonkers again. The...
  8. Thanks Debra, I appreciate your concern.Hopefully...

    Thanks Debra, I appreciate your concern.Hopefully you will not have kidney involvement. Today I went to dialysis. Not a lot of fun. tomorrow, I have plans to go out with friends.
    Keeping busy does...
  9. Hi Annekt: Sinxw you have been so supportive, i...

    Hi Annekt: Sinxw you have been so supportive, i want to thank you. I went to my Rheumy at University of Miami and to Nephrologist.We agreed to start the dialysis today,Please pray for me.
    My best...
  10. Hi Lisa Mae: I think I wrote todays story on the...

    Hi Lisa Mae: I think I wrote todays story on the wrong link !Sorry. Thanks for responding. I went to my rheumy today and she aid my P anca tithers wera much lower,due to Rituxan
    Gave me 10 mg pred...
  11. Went to Nephrologist who showed me my markers:...

    Went to Nephrologist who showed me my markers: creatinine, etc., have been getting worse. He gave me a choice, wait one more week or get bloodwok tomorrow and start dialysis on Thursday.Lovely,
    isnt...
  12. Has anyone done dialysis? My kidneys are so bad, nephrologist mentioned possibility

    If I need to do it, I will ask for the peritoneal, which you do yourself overnight.I see my rheumatologist on Tuesday.This is really major stuffand needs to be discussed.:mad1:
    Not too thrilled. Any...
  13. Has anyone done dialysis? My kidneys are so bad, nephrologist mentioned possibility

    If I need to do it, I will ask for the peritoneal, which you do yourself overnight.I see my rheumatologist on Tuesday.This is really major stuffand needs to be discussed.:mad1:
    Not too thrilled. Any...
  14. To Annekt: I am going through a bad time. Your...

    To Annekt:
    I am going through a bad time. Your words are so supportive. I will let you all know what happens after doctor visit tomorrow.I went to church and prayed, for me and for all of you.
    Good...
  15. Hello, I am Magnolia. I was diagosed with partial /weg in 2002.

    Nice to meet you all !!I hope I can contribute with my experience of this rolle coaster ride....and learn from your stories.
    After my initial flare and 6 months of pred. I was o.k. and remained so...
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