Search:

Type: Posts; User: howard

Search: Search took 0.00 seconds.

  1. Replies
    23
    Views
    2,393

    Re: Probiotics ? No Thanks..

    I just remembered that I was drinking a lot of a specific probiotic drink the Summer I had my first flare-up. I don't even know what to think of this. I'm hoping it was just a coincidence but now I...
  2. Replies
    5
    Views
    1,350

    Prednisone and diet

    Hi all,

    I'm currently on 60mg/day of prednisone and I want to eat everything I can get my hands on all day and night long.

    I've read that prednisone increases water retention and inhibits...
  3. Replies
    10
    Views
    1,232

    Re: Problems with breathing

    Hi isi92,

    If this is really scaring you then go to the emergency room. Do you have a pulmonologist? Let him/her know what's going on right away.

    Don't be afraid. For all you know this can be...
  4. Replies
    6
    Views
    743

    Re: Had lung biopsy yesterday, best news!

    Thanks Alysia. Yes, it was from the pred. When I had my blood work taken my white cells were really high so they wanted to biopsy the large mass before starting other treatment. Many doctors think...
  5. Re: Your experience with the healthcare system when you first began suffering from GP

    Hi Levi,

    Your experience sounds very similar to mine, and I can tell you're reasonable and polite. I consider myself pretty patient, reasonable, and polite which was why my experience was so...
  6. Replies
    6
    Views
    743

    Had lung biopsy yesterday, best news!

    So three weeks ago a CT scan revealed 4 masses in my lungs. One large one by my right shoulder (which was causing extreme pleural pain), one by the plural lining of my heart (more extreme pain), one...
  7. Your experience with the healthcare system when you first began suffering from GPA?

    This is more a post about the healthcare system and how it is trained to react to GPA and less about the disease itself. Each of us has that one doctor who saved our life and/or the family members...
  8. Replies
    12
    Views
    1,239

    Re: Just came back from sinus biopsy

    I know exactly how you feel, John.

    After a few weeks of everything being unbearable I finally went to urgent care for help because it felt really scary and serious.

    The doctor told me I had a...
  9. Replies
    12
    Views
    1,239

    Re: Just came back from sinus biopsy

    Hi all,

    The sinus biopsy came back suggestive.

    I had a 10/10 flare up with my eyes last night. They felt like they were being burned out of my skull.

    I'm currently inpatient at Upstate...
  10. Replies
    12
    Views
    1,239

    Just came back from sinus biopsy

    Hi all,

    My blood tests haven't come back yet, but my creatine levels are normal. My doctor allowed me to start prednisone because my tongue and eyes are becoming enflamed, but I don't know if...
  11. Replies
    12
    Views
    1,059

    Re: Just found out yesterday

    Hi Michelle,

    It feels good to have people to relate to. I'm sorry you had to wait so long to begin treatment, I can't imagine what it was like to go through that. It's really hard to not feel like...
  12. Replies
    12
    Views
    1,059

    Re: Just found out yesterday

    Hi Alysia,

    I agree w/the faith sentiment.

    I haven't had much of a cough just shortness of breath (how much is from pain vs volume idk, it just hurts). I don't think the masses are IN my lungs,...
  13. Replies
    12
    Views
    1,059

    Re: Just found out yesterday

    Hi Gilders,

    Thanks for being supportive and sorry for what you have to go through w/your kidneys.

    I'm feeling better now, I just had a really shocking episode and passed out for a while. My...
  14. Replies
    12
    Views
    1,059

    Hi Alysia, I just had a round of blood tests...

    Hi Alysia,

    I just had a round of blood tests yesterday where I assume my pulmonologist was checking for c-anca and pr3. I've had a CT scan, I'm not sure if he was able to identify it from that....
  15. Replies
    12
    Views
    1,059

    Just found out yesterday

    Hi everybody,

    After a month of worsening symptoms and battling uphill with doctors that something is seriously wrong, that I don't "just have a cold and sinus infection" I ended up in the ER 3...
Results 1 to 15 of 15